Lymphedema

I've got a telehealth appointment tomorrow with my doctor to go over my lab results. They're pretty bad. She's gonna be cross that I haven't found an Endo yet. I'm on a really high dose of insulin. It's not helping. But it's making me gain weight really fast. It's kinda scary.

But I'm gonna talk to her about getting me a proper rescue inhaler. I've got dulera but that's just twice per day. When I go up and down the stairs or walk for more than 5 minutes I can't catch my breath.

I'm gonna get a refill of my Norco. I've been trying to contact my previous back surgeon but they haven't responded to my 2 emails and phone calls. As long as I am making an attempt, my doctor will refill my meds. I've only been taking maybe 5 per week. I'm trying to use my tramadol more often. I'm not addicted. And I intend on staying that way.

My doctor is concerned about my lymphedema and high blood pressure. I told her how my cardiologist is handling it and she's kinda pissed. The new meds aren't working. And I had a low symptoms day on Tuesday so my cardiologist thinks everything is fine. And even after emailing her pictures of my pitting lymphedema, I haven't heard back.

I'm so frustrated. And my anxiety is making me sick. I'll talk to my doctor about how bad my adjustment disorder is. Maybe she'll have an idea. She's a good doctor.

#COPD #Diabetes #ChronicPain #a1c #BackPain #Lymphedema #HighBP

This is the summary of my day so far:

Dr:*gently pokes my shin* I don't see any pitting lymphedema so I don't think you will need the compression socks.

Me getting home:*presses on shin for 3 seconds and I created a crater* the fuck...

Me:*calls doctor* I need your email address so I can show you my pitting edema.

Dr.: oh...

Hopefully next week I'm getting compression socks. This swelling is making walking very painful.

#Lymphedema

The skin has no elasticity so it's swollen and stiff and tight. My ankle is 3x it's normal size and hardly turns. It hurts to walk. So tonight I took a caffeine diuretic. My cardiologist doesn't want to see me until the 26th. Fine. But I'm not gonna let this go. If she doesn't like it, I can find a new doctor.

#Lymphedema

It might be because I drank a bottle of IQ Joe with my dinner lol.

Now Pauley and I are eating chocolate chips. She's going down obscure rabbit holes on Wikipedia while I'm just listening to music and researching medical stuff.

Today was testosterone Tuesday. I have been back on T for about 3 months. My facial hair is coming in thick and my voice is cracking again. But I'm also breaking out in lots of acne. Boy puberty sucks but it's a jillion times better than girl puberty.

My right foot is 2x it's normal size. Tomorrow the first call I'm gonna make is to the Endo. I'm concerned about how lymphedema and diabetes interact.

I'm feeling very invisible. If you see this post, what's your favorite poem? Or if you're feeling spry, write me a haiku about spring.#HRT #HormoneReplacementTherapy #Transgender #LGBT #Transman #testosterone #Lymphedema #Diabetes

How is this something to just dismiss and ignore? My cardiologist said that all I can do is elevate my leg and cut salt intake. But there are some safe diuretic pills that I can take. I'm really upset.

#Lymphedema

My feet are huge. 2 days ago I emailed my doctor but I haven't heard back. I'm gonna schedule an appointment to discuss my lymphedema. She said if it got worse we could talk about it and yeah it got worse. I gave the new meds 3 weeks. And I can't find anywhere to get compression socks with my insurance. I'm so stressed out.

And the pharmacy my doctor sent the script for dexcom to doesn't accept my insurance either. So I gotta find a different one that will deliver.

My caseworker from yesterday found the info page for the surgeon my neuro-ophthalmologist referred me to. The page had a link to request an appointment so I filled it out. I'm hoping to hear back.

I am so anxious about eye surgery. I've had a lot of surgeries over the last 9 years and I've done really well with handling it. I even had major back surgery 2 and a half years ago. But for some reason eye surgery scares me the most.

Just thinking about it is making me cry. So I'm just gonna lay here and drink my coffee and cry for a bit.

#intermittantexotropia #Strabismus #Depression

I got a text out of the blue today from my local QPP. We don't really talk much, he's so busy with work. But he said he really misses me and wants to see me soon. So we talked about maybe getting together next week for bubble tea and Italian street food. We used to get bubble tea at least once per month, but we haven't gotten it in over a year! So we're kinda really looking forward to it. #Relationships

I discovered my favorite flavor of bubble tea maybe 3 years ago... Taro, caramel and banana with tea and coconut milk and no ice. It's amazing. It tastes like fancy popcorn. And if you know anything about me by now, you know how important my tea and coffee is to me. I've taught pauley how to order the drink I like for herself cuz she's still learning about the different types of offerings.

The next time we go out to get bubble tea I'm gonna have her try the lychee jellies. They're so yummy in fruit teas. I don't like the bursting bubbles. The skin is gross.

My foot is still quite big and hurts. I'm gonna call my cardiologist tomorrow to get their email address so I can show them how big it is. I'm hoping she'll admit she made a mistake and put me back on lasix. #pittingedema #Lymphedema

Pauley and I need to go to the medical building at the hospital to get compression socks. I have a prescription for them. Incidentally I was told my script for dexcom was sent to the same place but I haven't heard anything about it. I'll schedule transportation for the week after next week. I've got 2 appointments next week. I'm trying to space them out so I'm not running myself into the ground.

One of our friends lives near the big local mall that I want to go to. I'm gonna try to ask her if the 3 of us can make a day of exploration. I heard there's an aquarium in the mall. While nobody is looking, I'm gonna eat all of the fishes! Om nom nom.

Pauley and I talked about going to demolition derby races and I'm really excited. I love car crashes. It's not for a few more months but I'm anxious and excited.

I'm trying to focus on the positive. I only googled my condition once. Of course I ate about 400mg of sodium in my dinner which made my feet bad. But I needed comfort food. Gnocchi is my new favorite comfort food.