I was just diagnosed today after about 6 years of complications and one year of pure hell. My body doesn’t feel like my body at all anymore. I am relieved to finally have concrete answers but scared of the future all at the same time. I am unsure how to let people know what is going on with me and I wonder if they will even understand if they know. To everyone struggling with this, just know... you are brave... you are beautiful... you’ve got this ❤️