Dysautonomia

Hi, my name is mrswarneke2018. I'm here because POTS is hard and we all need support

#MightyTogether #Dysautonomia

Hi, my name is LWacker.
Learning about POTS Dysautonomia resources.
#MightyTogether

Hi, my name is potspainandpatience. I'm here because

#MightyTogether #Fibromyalgia #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #IdiopathicHypersomnia #Anxiety #Depression #PTSD #FunctionalNeurologicalDisorder #IrritableBowelSyndromeIBS #Dysautonomia

I've never posted on here before, but I've been thinking about my future and I wanted to see if anyone had any tips. I'm in high school and I have POTS and chronic hip and knee pain. I want to do a year of culinary school before going on to do an undergrad in university, but I'm worried that I won't be able to keep up with standing up for so long and the speed of the kitchen if I'm unable to stand for hours. I want to have a realistic idea of what I'm physically able to do and what can be accommodated, and I'm pretty sure that this idea is just a dream and not something I can pull off. I don't know. Does anyone have any tips? Either way, I'm going to do an undergrad in university, but I really want to try this out for a year and add that experience to my life.

Thank you for any advice you might have. #ChronicPain #POTS #Dysautonomia

Hi, my name is WingedMagpie9770 Looking to connect with others who have Dysautonomia

#MightyTogether #NeurocardiogenicSyncope

I'm back home now, the doctors think I had a bad POTS flare up, not sure why. I was also given a prescription for a medicine for vertigo. #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #Dysautonomia #CheckInWithMe #MightyTogether

Hi just wanted to sorry if I'm not so active, I just talked to my cardiologist and she wants me to go to the ER. I will keep you all updated whenever I have a chance. #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #CheckInWithMe #MightyTogether

I fainted at work and had to go home early. Just trying to stay positive. #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #AutonomicDysfunction #CheckInWithMe #MightyTogether

Recently, (since mid-October) I have been getting some really low heart rate readings. This week it has gotten really bad, and I’m struggling to stay conscious. I swear I’m only a fully awake human for about 4 hours out of the day, usually around this time. I have no idea what’s going on. My two thoughts are 1) maybe I’m aging out of some of my medication??? or 2) my body is DONE with my crappy sleep schedule, and it is knocking me out the only way it knows how!

Have you ever experienced anything like this? What helped? Also, should I be considering going to the hospital??? I never know when things are serious enough to warrant that. Let me know! Any and all advice is welcome!

#POTS #AutonomicDysfunction #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome

I am glad to join this group as no one understands the bond that I have with my two dogs. I had an atypical case of guillian barre where I lost became weaker and weaker over the course six weeks to the point where I could not get up, walk, or sit up unassisted. One of my dogs was unable to go up the stairs. In the last few weeks before I went into the hospital I spent most of my time upstairs in my bedroom and the bath across the hall. I missed my dogs terribly. They didn’t see me differently I was still the person who gave them snuggles and they would still light up every time they saw me. They were the only ones who could make me forget the horror I was going through. I would gather all of the strength and energy I had to scoot down the stairs to see them. They brought me more love and comfort then anything else could at the time. For reference I have two cute gentle and lovable giant dogs so carrying them up the stairs was not an option. They continued to bring me joy and happiness post hospital stay and throughout my journey to recovery. They even learned to walk while I “chased” them trying to get their toy. The thing about dogs is that no matter what state you are in they will always see you as their person. I don’t think any of my family truly understands how much they helped me get to where I am today or how much they both truly mean to me. They kept me going when it would have been easy to give up. Even now while I have mostly recovered from my guillian barre they bring a smile to my face when I have bad days with my health from my other illnesses. #womansbestfriends #GuillainBarreSyndrome #Dysautonomia #Gastroparesis #SmallFiberNeuropathy