MarilynsFight4Life

Create a new post for topic
Join the Conversation on
22 people
0 stories
2 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Dealing with #chronicpain #MarilynsFight4Life #fighting4acure #sarcoidosisawareness

I am tired of dealing with doctors that just don't get me. My Cardiologist and Rheumatologist did not refill my meds. The want me to come into the office and not via TeleMed. I truly love my doctors, but not having meds to keep me alive and not in excruciating nerve pain is sad. After experiencing stabbing pains in my head everyday that lasts 35-40 minutes straight, and itching like I have chicken pox or something. All this kept me awake and also with the excruciating bones and joint pain; I cried all the time and felt alone. Finally, my PCP and my Neurologist had enough and wrote the prescription's that I needed. On top of having #ChronicSarcoidosis #Fibromyalgia and #RheumatoidArthritis and relying on 5 liters of oxygen 24/7; I can't afford to not have people in my corner that really understand my fight. I know we all have experienced something like this at one time or another right? #sarcoidosisawareness #LivingWithAChronicDiseases #MarilynsFight4Life #fighting4acure #Fibromyalgia #RheumatoidArthritis #LivingWithChronicPain

1 comment