MHEandWe

I have a #RareDisease called #MultipleHereditaryExostoses (also known as #HereditaryMultipleOsteochondromas or #HereditaryMultipleExostoses ) and truthfully my MHE doesn’t just affect me! Even though I have the diagnosis, my family has ways had to deal with the same traumas I have had to, including the #medicalgaslighting and #Ableism that has filled my life since day one.

Instead MHE and Me, let’s know it’s a WE thing. It’s bigger than just me 💜

#HereditaryMultipleOsteochondromas affect every single person who loves the one with the genetic disorder; we need to change the narrative to be a WE thing, and not a ME thing 💜

#MultipleHereditaryExostoses #MHE #RareDiseases Who is affected by MHE? Let’s connect!