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What I Wish My Family Knew About My Misophonia

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We are all gathered around the table for dinner. Forks scrape across plates, mouths chew, drinks are sipped and runny noses sniff. Just one of these noises alone is enough to drive me into a frustrated breakdown. When I tense up “randomly” during dinner or have to get up to refill my water more times than necessary, it’s not because I don’t appreciate the beautiful gift of gathering around the table. It’s simply because I need just one minute of silence.

daughter and mom

I have a condition not many people seem to know about called misophonia. Misophonia has become a part of my day-to-day life since I was 13 and has seemed to progressively expand its library of trigger sounds along the way.

When I hear a trigger noise, my body engages in a knee-jerk reaction, such as flinching or tensing up. Depending on the loudness, severity and duration of the noise, I have fight-or-flight reactions, ranging from rushing out of a room to remaining there as tears stream down my face.

Misophonia makes it hard for me to sit through meals with my family no matter how much I love them. While we eat, my mom always makes sure there is music playing so I have a distraction, and my family tries to be extremely patient with me even though they don’t understand why I am getting worked up over something as simple as a noise.

I can’t sit through a movie in a theater because people around me are eating their popcorn, and it’s all I can focus on. I’ve had to switch classes from lecture halls to online courses simply because someone sniffed, and I knew I couldn’t sit for an hour a day, three days a week in a room of more than 100 people and remain calm. I take my tests in a special testing center so I might actually have a better chance of concentrating on my test with a lower number of possible trigger sources surrounding me.

Misophonia is not something I can just “get over” or “take some deep breaths” to deal with. Instead of telling me to relax or grow up, take the time to ask me what I need. Take a minute to ground me or let me take a minute for myself. I have to try a lot harder than most teens my age to be able to tolerate being around people, but I am trying.

Claudia LaGarde.2-001

The Mighty is asking the following: What’s one thing people might not know about your experience with disability and/or disease, and what would you say to teach them? If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Share Your Story page for more about our submission guidelines.

Originally published: December 29, 2015
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