Motor Neuron Diseases

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Motor Neuron Diseases
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    Community Voices

    I was just remembering the birth of my daughter and how much of a struggle it was. I had an unexpected bellspalsy and motor condition that brought my baby girl into this world. Having the proper therapy and ongoing therapy up to this day to keep my droopyness away is a constant struggle. But Sometimes good things happen after the storm comes through and strengthens you. Its all for you snugglebug, mommy loves you.
    #MotorNeuronDiseases #Anxiety #FacialParalysis

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    Community Voices
    Community Voices
    Cari Joyce

    How My Wheelchairs Have Helped Me

    People in public stare because I use a wheelchair, but that does not make me any different than you. I also love getting around and enjoying what life has to offer. Each of my wheelchairs have been Quickies. I name them after flowers because they are pretty and cheerful just like flowers. Each of them has had a special purpose and helped me grow. I got my first wheelchair when I was 3 years old. It was a purple Quickie Zippie. I named her Violet. Together, Violet and I went on lots of adventures. It was with Violet that I first met Cinderella at Walt Disney World. Violet was also with me for my first day of preschool. She taught me to be social and helped me feel confident. In second grade, I happily welcomed Rose to our family. Rose is a fuschia-colored Quickie Ki. Rose and I splashed through splash pads and rolled into the kiddie pool at Enchanted Forest Water Safari. I also got to wheel out onto the beach of the Atlantic Ocean at low tide. She carried me to go on shell-hunts and nature walks. Rose taught me to be a water lover and a nature lover. Rose showed me that she could take me places that my legs wouldn’t. Last summer I was introduced to Daisy. She is a hot pink Quickie Zone. We don’t know each other that well yet. Daisy only got to carry me for the two weeks before my hip surgery. She waits patiently for me while I recover. When Daisy and I get reunited I look forward to taking her for spins on the local high school track. I can’t wait to show Daisy the beach pier at Fairhaven State Park, and I bet she will love going to Boston just like I do. I know Daisy and I will have a great time wheeling oceanside at the Boston Wharf. The one thing that stinks about wheelchairs is that they can’t grow the same way people do. Eventually I outgrew Violet and Rose. I know I will also outgrow Daisy one day. Each wheelchair has helped me to go on the kind of adventures that teach me more about myself. Like the flowers they are named for, I bloom and grow alongside them. ¨Have courage and be kind” — Cinderella

    Sarah Schuster

    Stephen Hawking Has a Message for Anyone Who's Been in a 'Black Hole'

    Renowned scientist and professor Stephen Hawking ended his latest lecture on black holes with a concept you don’t have to be a scientist to understand: hope. The lecture was at the Royal Institution in London on Jan. 7, the day before Hawking’s 74th birthday. Professor Stephen Hawking delivering his @BBCRadio4 #Reith lecture – pretty amazing start to 2016— Sophie West (@soph_west) January 7, 2016 In his talk, Hawking described the history of scientific thinking about black holes, explaining how they’ve challenged our conventional understanding of universal laws, The Telegraph reported. For example, he said it may be possible to fall into a black hole and come out in another universe. “The message of this lecture is that black holes ain’t as black as they are painted. They are not the eternal prisons they were once thought,” he said. “ So if you feel you are in a black hole, don’t give up – there’s a way out.” Hawking was diagnosed with a motor neurone disease in 1963 at the age of 21, just as he was starting his PhD at the University of Cambridge. He was told he had two years to live, according to his website. In a speech delivered on his 70th birthday, he spoke about experiencing a period of depression. “At first I became depressed. I seemed to be getting worse pretty rapidly. There didn’t seem any point in working on my PhD because I didn’t know I would live long enough to finish it,” he said in the speech, The Guardian reported. Hawking did more than beat his two-year prognosis. He wrote the international best seller “ A Brief History of Time,” founded the Center for Theoretical Cosmology at Cambridge and “regarded as one of the most brilliant theoretical physicists since Einstein.” So if Stephen Hawking says there’s a way out of whatever  “black hole” you might be in, we’re not going to argue with the science.