Neuromyotonia

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    What does your breakfast look like? #AutoimmuneDisease #Neuromyotonia #Issacssyndrome

    These will be followed by shake that consists of chocolate vegan protein powder, 2 bananas, magnesium supplement, vitamin D supplement, 1 cup off coffee and 1 cup of coconut milk.
    I can usually choke it all down without much problem, but man do I crave some bacon and eggs☹️

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    Take these broken wings and learn to fly #IsaacsSyndrome #Neuromyotonia #TheBeatles #Blackbirdsinginginthedeadofnight #Tattoos

    Learning what this new, broken and battered body can do...

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    Finally diagnosed #Neuromyotonia

    I can’t believe the weight that has been lifted after finally having an answer. I see the cardiologist on Friday (it’s affecting my heart and esophagus too) and after that we should have a treatment plan. I feel like I can start a new chapter now and look forward to where I’m going from here. It was a good day!

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    Almost exactly 7 years since my medical odyssey began

    No diagnosis yet, but we’re narrowing it down. 1 week from today, May 6th, will be that day.
    I’m not exactly sure how I feel about it yet, but it’s finally here. #Acqired neuromyotonia #Neuromyotonia #StiffPersonSyndrome

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