Just this week two of our family members diagnosed over 23 years ago as PAN Vasculitis have found through internet research, communication with DADA2.org, DADA2 foundation assistance and a quick blood test that their diagnosis is possibly being changed to the newly revealed (2014) rare type of Vasculitis DADA2. This will likely change not only our diagnosis but our treatment - a lot to absorb within a week! It took us at least 13 years originally to get diagnosed with Vasculitis as the cause of illness in our son and years for myself. I will share more on this as soon as genetic tests are completed and diagnosis is confirmed by physicians. I would rather not go into further detail until we are sure. Those who are interested in DADA2 should visit www.dada2.org for further information. #PANVasculitis , #DADA2 , #PolyarteritisNodosa