That's the word that comes into my mind, when I think about having
several chronic illnesses.
Betrayed by my own body. Having to fight just to do the "normal" things in life like
getting up, taking a shower, going to work etc.
Every time you think you've come to terms with the current status life throws
something new your way.
And there you are… Again standing before the next mountain they expect you to
In my case this mountain is named MPA (Microscopic Polyangiitis)
At the moment it's just a suspicion.
But I'm tired. Tired of getting a new diagnosis every other day. As if EDS, PTBS,
Autism, chronic Migraine blablabla isn't enough.
Tired of them expecting me just to take it. To put on that brave face and keep going
like it doesn't affect me.
Truth is: I am so scared right now.
And I don't know how to go on from here....
#DistractMe #CheckInWithMe #scared #EhlersDanlosSyndrome #Vasculitis
Hi, my name is Sherry (MySharona for this site) I'm here because of a recent diagnosis of Livedoid Vasculitis and I’m hoping to connect with others whh have it.