Fear that I'm not really ok...
I was diagnosed with #POTS 2 1/2 years ago, and have been living with symptoms for at least 7 years. For the first 2 yrs after my diagnosis, I was stuck with a doctor who clearly wasn't putting in much effort to help me, so I saw no improvement at all. I now have a great doctor that I love, and his treatment plan was so encouraging, but I'm currently pretty #discouraged because since January I have had covid and walking pneumonia, therefore I've had a big setback. I'm so tired of feeling bad ALL the time. I have 2 young kids, and I feel like my lack of ability to participate in things with them is wrecking their childhood. I also have always been a big worrier, so even if I've dealt with certain symptoms before, if they are really acting up, I get afraid that the doctors missed something, and I'm gonna die. I just need a community that understands and that can reassure me that my symptoms are normal to my condition. #mentallyexhausted #sotired
Filter your thoughts
After getting diagnosed with POTS last year, I thought that was going to be the end of the mystery of why I feel so sick. But, just as life happens to unfold, this was indeed not the end.
Once I started treatment, things got a bit better. I could work again and I was only fainting a few times a week, if that.
However, recently, things have gotten worst than ever. I'm back to fainting multiple times a day, except this time it has left me almost completely bed bound. I lost my job, my hobbies, my ability to even shower without someone close by.
It's been hard.
But even worst is I am having bad abdominal pain, constipation, vomiting episodes, and more GI tract symptoms which I've never had before.
I heard that POTS has many comobilities, and I fear that this might be one developing.
I am trying to hold out and change my lifestyle but as the days get worst I fear I may have to go seek urgent help.