Day 16 – Wear #reds4veds

What is vEDS ?

vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax. vEDS can cause symptoms in many different areas of the body, so people with vEDS may require multiple providers in different specialties to manage their care.

(source : Elhers Danlos Society)

I do not have this type of EDS but it is related to my previous posts. EDS and HSD are more than hyperlaxity otherwise it would not be diseases so the prejudice that this would only be hyperlaxity should go to be buried. They have enormous consequences for our health that can go far. Fortunately, for vEDS there is a genetic test but it would have been impossible without science without research support. So do not hesitate to share or take a picture of you wearing a red outfit and with the hashtag #REDS4VEDS.

Thank you all and have a good day.

#EhlersDanlosSyndrome #MightyTogether