Rhizomelic Chondrodysplasia Punctata

Crystal’s daughter, Marley. My daughter Marley was born with an extremely rare disease called Rhizomelic Chondrodysplasia Punctata (RCDP). It affects less than 100 children worldwide and is most often terminal by the age of two. Although Marley’s life has not been without complication (she has had 30+ surgeries on her bones and brain and eyes and [...]

Every parent wants the best life for their child. You read all the books and follow the doctor’s orders because you know every choice you make with affect your child. You’re in control, you make the rules; it’s your job to protect your baby from everything harmful in this cold world. But what happens when [...]