Yesterday, in a family text feed, my sister posted an article that pointed out the air quality in urban areas and how it possibly led to the large amount of medical problems that people of color face. apple.news/ApYhrSPFrS62hzcy2hzcy2EDQYIw
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So, I stated how it made sense, especially within the Sarcoidosis community as we fight to find the origin of the dis-ease since it was long stated that people of color were affected at a higher rate than other races. When I was young, there was a lot of tree spraying and that residue came down on us. My mother was diagnosed with this disease when I was young and she stayed in the hospital for a month while they tried to figure out what it was. I'm just trying to understand.  #MarilynsFightForLife #fighting4acure #LivingWithChronicPain   #sarcoidosisawarenessmonth
I was originally diagnosed with Pulmonary Sarcoidosis which resulted with me requiring 24 hour oxygen support to live. Now, I am considered one with Chronic Sarcoidosis since the disease is affecting several areas within my body. My niece, who is a general surgeon, posted a study about Sarcoidosis from 1991, that listed outdate information. I told her that appreciated her effort, but that she could find up to date information about the disease on the Foundation of Sarcoidosis website: stopsarcoidosis.org as well as in the upcoming documentary via: http://sarcoidawarenessfilms.info. She replied, "Here's a 2020 paper if that's more your speed. Same synopsis."
Truthfully, I don't know why it always come to this with my niece. I just added to the conversation about how I could agree with the information posted by "Her Mother" originally. I never intended to make it a "Me" conversation. She responded to me that nobody doubts my struggles or pain and that she feels for me, but why do I make every conversation pivot to my experience? Huh? What? I just don't get it. Within this family dynamic I just should stay quiet. Why? This is where I need your help to understand if I, indeed, did steer this conversation towards me? I am an advocate for Sarcoidosis yes, but in this conversation I just agreed with my sister and questioned if this would help with determining the origin of Sarcoidosis within me. Was I wrong to say anything?