Scimitar Syndrome

Hi, my name is Eline_2008. I'm here because I was born with a rare heart condition called Scimitar syndrome. It only affects 1-3 people in 100.000. Growing up struggling with my health really changed me as a person. I am better now and am on here because I want to share my story. I hope that we can raise more awareness for children with heart problems, so they don't feel like their fighting the battle alone.
#MightyTogether

I'm here because I have a few rare diseases 1st was a congenital heart defect #ScimitarSyndrome which lead to 3 #OpenHeartSurgery and 1 #stent after I was diagnosed with #PulmonaryHypertension and now testing is in the works for #Scleroderma non skin so here I am figuring it all out !!! Hello 👋🏾