takingbackmypower

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Where have I been? A lot had to happen

I want to preface this with letting you know this my personal journey,and by no means any type of instruction.
I decided to get a new phone number to not only better protect myself,(set a boundary),but also a fresh start of sorts.
I didn't not do a lump transfer of contacts,nor apps & passwords. I didn't realize that also meant this app. I could have used a lot of mental energy to figure out a way to return,but quite frankly I needed all my mental & physical energy to take the DEEP dive into to facing my trauma before it ended me,or worse I continued to volunteer for additional trauma. I am far from done, but just as there has been a drastic physical change in my appearance, so has my mental state changed.
My new/old phone bit the dust,and I am using my old phone til I have the funds to get a new one. Hence The Mighty app was on here. I see a lot has changed,most of those I followed in the past (2 years)here,are no longer active. I'll take that as a sign,that like me,,, it's for their higher good. I can love you, because today I love and accept me.
✨✨💜💜✨✨ #MentalHealth #Healing #takingbackmypower

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Someone has to educate the Drs....today, that person was me

Today was the 1st time I ever heard a Dr say, "EDS? What's that? I've never HEARD of it before." Then asked me to help them understand what I go through and how they can learn more about it. My response began, "That's exactly why it took 46 years to get a diagnosis." Then a 5 minute appointment for an injection turned into an hour briefing of my journey & physical symptoms. I imagine most of you have similar stories. Is there a way we could band together, to create awareness and change? REAL CHANGE? To save others, (including my kids), from having to walk the same relentless and frustrating path #groundswell #EhlersDanlosSyndrome #EDSAwareness #takingbackmypower #WeDeserveBetter
#cause TheWaveBeTheWave
#RealChange

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