Tolosa-Hunt Syndrome

I have chronic Tolosa–Hunt syndrome.it is a rare disorder characterized by severe and unilateral headaches with orbital pain, along with weakness and paralysis (ophthalmoplegia) of certain eye muscles (extraocular palsies).Or as I simply explain my brain swells,my left eye gets stuck and I have double vision.Being that 1 in a million has made me kinda disabled for the past +4 years and facing this chronic illness on steroids and immune suppressants hardly fills me with joy.I feel very lonely and wish to interact with fellow patients...