UCD

I’m wondering if anyone has encountered this before - my condition directly affects my kink and it’s pretinent I clarify some aspects with my doctor/oncologist. Does anyone have suggestions on how to approach the subject without appearing brash and getting a “raised eyebrow”? I’m hoping to get some unbiased answers from a professional.
Thank you in advance.
#kink #disclosure #illaskwhatyouwont #UCD #inoperable #subcarina #ropebondage

My name is Quinn. I was born with ornithinetranscarbamylase deficiency. I had a transplant in 2018 to save my life. I have only ever met 4 other people with it and they were all girls so not fully relatable. However I was much more severe than they were which has causes my doctors and I to question if there is something else going on because not all my symptoms correlate with that diagnosis. I got a skin biopsy to test my collagen because my doctors are looking into ehlers danlos syndrome. I'm tired and being sick.