VascularEDS

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    vEDS Virtual Conference July 30-31

    Community and Healthcare Professionals Event July 30-31.

    Join us for our EDS ECHO Summit Series: #VascularEDS (vEDS) virtual event, with leading expert presentations on care for individuals with #VEDS and comorbidities. CME/CE/CEU credits available: buff.ly/345QNxy

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    See full photo

    vEDS Virtual Conference

    Community and Healthcare Professionals Event July 30-31.

    Join us for our EDS ECHO Summit Series: #VascularEDS (vEDS) virtual event, with leading expert presentations on care for individuals with #VEDS and comorbidities. CME/CE/CEU credits available: buff.ly/345QNxy%3Ctopic%20id= " originalText="https://buff.ly/345QNxy#EhlersDanlosSyndrome ">

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    Am I the only one?

    Has anyone been diagnosed with #VascularEDS ? Or #Hypermobility and had a dissected or ruptured artery?
    #VEDS
    #HEDS
    #EDS
    #VAD
    #VertebralArteryDissection

    I tested negative for all genetic markers re: connective tissue disorders, including Vascular Ehlers Danlos Syndrome , but I did have a Vertebral Artery Dissection several years ago. I have other EDS symptoms. Still no answers. Wondering if I’m the only one. So I’m assumed hEDS. However, my cardiologist thinks I have some type of vascular disorder, so it is like I have vEDS, but no clue.

    Please share if you have had a similar experience!

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