hypermobility

I think I have craniocervical instability. I'll be going for an MRI soon. I had a CT scan in the ER Monday. I went because I was in so much pain! The findings show bone spurs, arthritis and nerve compression and that was only in my C1 through C6 vertebrae! 🤣

Some days, it hurts to sit, stand, even lie down. Some days, I cry from the pain, other times I cry in frustration. I am slowly having to learn my limitations.

What helps to relieve your pain?#EhlersDanlosSyndrome #POTS #Fibromyalgia #Arthritis #Hypermobility

I have ME/CFS, erythromelalgia, and what I strongly suspect is hEDS. With that being said, my knees, mostly the right one, subluxate almost daily, and even when it doesn’t come out I sometimes have to “crack it” for lack of better word, in which I straighten my knee as much as it’ll go and it clicks and feels better, for it to feel right. Often when having my legs bent (I.e. sitting on my knees) is when it subluxates. My question is how rare are knee subluxations actually? When I look it up it only shows patella (kneecaps) subluxations and said that real knee ones are quite rare. I’m uncertain because my kneecap looks normal when I know my knee is out partially. To click it back in, I have to straighten it for it to pop back in, and sometimes push it back and like hyperextend it to get it back in fully.

My question is how do I know if it’s my kneecap or my knee, and does anyone have advice on how I can keep it in the freaking socket. Thank you!! 🫶🫶🫶
#Hypermobility #EhlersDanlosSyndrome #MyalgicEncephalomyelitis #Erythromelalgia

I have hEDS and have many joints that sublux. The worst are my collarbones, subluxing many, many times a day. They dont hurt, but it is uncomfortable and they come out basically whenever i put my arms above horizontal with my shoulders. I always hear about knees and shoulders subluxing, but not much about collarbones. I have tried a lot of physio but my physio has been finding it hand to target the area of muscle that is the problem. If anyone has any experience with collarbone subluxing or any tips and tricks, it would be very appreciated!!

#EhlersDanlosSyndrome #Hypermobility #collarbone #Subluxations

Second day of this week. And I'm in emergency . Thanks #EhlersDanlosSyndrome , #Hypermobility .
But I discover in this way, codeine helps me with chronic pain and pain cause of injury.

Hi, my name is Victoriam87. I'm here because

#MightyTogether #PTSD #POTS #Hypermobility #ME /cfs #neurodivergence

How does hEDS affect tattoos? I have super stretchy skin and slow healing because of hEDS.
Other family members have milder symptoms and their tattoos are fine, but l'm wondering if anyone with a case more similar to mine has tattoos. I'm most concerned about the image warping and the area having weird scar tissue.
Any advice is much appreciated! #EDS #Hypermobility #Tattoos #EhlersDanlosSyndrome

My name is Leaffouse. I’m 33 years old, living in New England. I am diagnosed with ASD, ADHD, PTSD, OCD, Vasculitis, POTS, MCAS and hyper-mobility. My previous doctors wouldn’t diagnose me with EDS but it’s highly possible. I’m also going through something neurological that is similar to MS or Early Onset Parkinson’s (symptoms of both so they need to do more in depth testing rather than just an MRI) that I need find a diagnosis for but all my tests come back “within range” and imaging I’m told is normal.

My neurologist, come to find out a PA, told me everything is in my head. It’s clearly not. The only doctor in my corner was my primary and we just moved out of state so I need to start all over! I was to be seen at Wake Forest but now I’m stuck starting over, waiting for referrals and praying I get a good doctor. They even misdiagnosed my vasculitis and told me my images were normal.

#Vasculitis #EhlersDanlosSyndrome #Hypermobility #MultipleSclerosis #ParkinsonsDisease