20 Photos That Show the Reality of Chronic Illness


How do you describe what chronic illness really looks like? It’s tough to get people to understand the challenges you go through every day, especially when at first glance, your illness may seem “invisible.” If people saw the doctor’s appointments, treatments, the effort it can take to go to work or spend time with friends, and how you fight through it all, they’d see the strength it takes you to manage your health while living the best life you can.

We asked our Mighty community to share a photo of the reality of their illness. Some shared a moment where they felt strong, others shared the moments when they were at their lowest — but all can hopefully open eyes to the truth about what someone with chronic illness “looks like.” If this is your reality, too, know you’re surrounded by others who understand the struggles (and triumphs) you experience every day.

Here’s what our community shared with us:

1. “At 19 years old I was diagnosed formally with SLE lupus nephritis… I’m a UCSF transplant candidate but can’t receive an organ if my lupus is active. I’m 26 years old with a health directive and my funeral wishes ready. But in so much darkness and suffering has come even more light in my life.”

woman standing with walker and wearing surgical mask

2. “Still out coaching tumblers with a cast on one foot and a boot on the other with torn and ruptured tendons in my ankles. Hooked up to my feeding tube and TPN and saline through my central line just so I have the energy to make it through the day. It takes a lot out of me and a lot of prep, but I still try to live my life over these obstacles.”

woman wearing backpack and cast on foot coaching gymnastics

3. “Autoimmune diseases are so hard to diagnose. This picture is from when my doctors had no idea what was causing all of my symptoms. I was constantly pumped full of different drugs in hopes that one would help me. People do not realize that it can take years to get relief from your symptoms and get a proper diagnosis.”

girl at hospital standing next to iv pole

4.In this picture, I was about to direct my first newscast of the day. I have chronic daily migraines that steal my vision from me, but life doesn’t stop for a migraine — I just have to put on my sunglasses and keep going.”

woman wearing sunglasses

5. “My husband smooching me during a recent iron transfusion for my severe iron-deficient anemia as a result of having Crohn’s disease for over 20 years. He makes me feel strong when I am at my weakest, despite being a type 1 diabetic himself.”

woman in hospital kissing husband

6. “The one thing that truly has power over my Ehlers-Danlos syndrome is strength training. It can’t heal me, but it enables me to live a blessed and mostly normal life, even if I do so with a lot of pain hidden behind my smiles and tiny muscles. Lifting empowers me. It helps enable my muscles to better compensate for weak tendons and ligaments, and it helps strengthen those same tendons. I couldn’t truly live without my gym.”

woman making fist at gym

7. “These are old pictures but it’s still one of my favs. Holding all of my babies that I shouldn’t have been able to have. Even though it’s tough having a chronic illness and being a mom, they are my reminder of how blessed I am.”

woman sitting on couch holding three kids

8. “My mum took this picture after my 13th surgery for hidradenitis suppurativa. She said I looked at peace, unlike what she was used to seeing. She never saw me sleeping so peacefully unless sedated because I’d be in so much pain otherwise. This was also my last surgery. I got tired of getting operated. My next cyst came a week after this surgery and I figured that I had to accept my life. Been happier since!”

woman sleeping in hospital bed

9. “Taken to show the truth of being pregnant while managing a chronic illness. It’s only relatively recently that people with cystic fibrosis lived long enough to reach adulthood, let alone get pregnant and sustain their health while maintaining the pregnancy… Struggling with lung infections, maintaining enough calories for themselves plus baby, and just having enough stamina to manage life were all problems that had to be overcome — but the day after this photo was taken, a healthy baby boy came into the world! Worth every minute of the struggle.”

pregnant woman sitting on exercise ball with breathing machines

10. “This was the first time I stood on my own. Even with help of the bars, it was me holding myself up. This is a very esoteric situation — unless you’ve been in a position where you’ve been unable to hold yourself up, this picture won’t mean a thing. However, to every person that was unable to hold themselves up, one way or another, this is a picture of triumph. This is a picture of ‘The Mighty.'”

woman standing holding handrails and physical therapy

11. “Many people only associated disabilities with barriers and weakness, but this picture reminds me we all need support from someone or people to ‘get up.’ (Took two or three people to get me on the camel, one to push me up, another pull me over and third steady me… but made it!) I have rare condition chronic inflammatory demyelinating polyneuropathy (CIDP). This picture was from first solo holiday in Morocco and I came back liberated as it reaffirmed a ‘limiting condition doesn’t have to limit my life experiences.'”

woman sitting on a camel

12. “This photo is so important to me because it’s the first photo that I shared on social media that was really honest about my chronic illnesses. Though it didn’t show the worst days, doctor appointments, hospital stays, blood work, or test results, the photo did let people see a little of what I was dealing with and what the smile, makeup and laugh was hiding.”

collage of photos of pills, hand wearing finger brace, monitors

13. “The reality of gastroparesis. Not being able to eat normally. I have a feeding tube in place that delivers formula to my small intestine. I bring my backpack everywhere since I am on 24-hour feeds. I got to model with my feeding tube.”

woman sitting on blanket on grass

14. “Me finally getting out of the house… Sometimes that is an amazing feeling. And sometimes it makes me feel very low because I used to be able to take my grandkids everywhere but now that doesn’t happen. So even though they are happy moments but at the same time they remind me what I can no longer do.”

woman in wheelchair next to young girl

15. “Spine degeneration L3, L4, L5, S1 muscle spasms frequently. I’ve had four back surgeries, still have pain, pills ain’t cutting it, home alone, was once successful guy been out work seven years now, depressed, anxiety anger, lonely, loss of desire and why dream. But I still just keep the faith. And pray.”

man leaning head down

16. “I have POTS, rheumatoid arthritis, joint hypermobility syndrome, Raynaud’s and undiagnosed digestive problems. This is my reality. I am 32 years old. I lost my ability to work at 28 years old was declared disabled the day before I turned 30. I had my driver’s license taken away. I take a handful of meds daily. Give myself weekly injections. Go to the hospital twice a week for IV saline to help me not pass out as much. Those are my trips out of the house. And my life revolves around doctor appointments. It’s not how I planned my life but things happen. I would be lying if I said it’s not a daily struggle. I try to stay positive though it’s hard some times.”

photo of woman and photo of iv bag in hospital

17. “This picture was taken two years ago after I had spinal surgery. It is one moment captured by my mom in the middle of the night. She wanted to remember my first steps following the operation as I learned to walk again. The nurses were determined to get me out of bed and to show me that I would make it through the aftermath. They wanted to prove that I could walk… This is one snapshot of a very long and painful journey through a mess of medical procedures, hospitalizations, tests… Many hugs to all who face illness and pain.”

woman in hospital walking with walker and nurses on each side

18. “So many people don’t know that this is my life. Weekly doctor visits and tests, being stuck with a needle so much my arms are nothing but black a blue. They say it’s in my head, and I agree. Since my head is my control center of everything. No matter what, just gotta smile through it. Hell, I’m happy just to finally have my diagnosis to my chronic fainting, and such.”

photo of woman smiling and photo of her wearing monitors on her chest and stomach

19. “Typical day, my beautiful sent-from-above boyfriend helping me with the Tramadol! I have Ehlers-Danlos syndrome and he’s been the best through it all!”

man holding syringe next to woman showing her arm

20.Both my reality and a power moment. Both a high and a low. Getting a new central line placed after beating sepsis (a life threatening blood infection), last week!”

woman showing bandaged arm


Find this story helpful? Share it with someone you care about.


Related to Chronic Illness

Letters tied with ribbon on writing desk.

To Those Who Think 'But You Don't Look Sick' Is a Compliment

Dear greater population, I realize that having a sick friend can be sort of like stepping into the world of unknowns. I know that sometimes you might not know what to say. But here’s a tip from a sick person – when you don’t know what to say, don’t say anything. Sometimes saying nothing speaks [...]
Three happy girls and dog on the walk in park

What Chronic Illness Has Taught Me About Friendship

Remember the pinky promises from grade school friends who we couldn’t picture our lives without? Or swearing that we would name our future children after our best friends, because that’s just how much they meant to us? Me too. It natural for friendships to evolve within a lifetime. People change and drift apart, we decide [...]
Woman painted blue, with gold specks on face and fold lipstick.

When Physical and Mental Illnesses Collide

Today was a tough day. I’m no stranger to tough days, but there are those special days when illness just makes you feel defeated. I’ll just say it, I’m tired of being sick. Not only am I exhausted from the symptoms of chronic illness, or the medication side effects, or the endless waiting rooms and [...]
Woman holds handful of medication in her hand.

The Phrase I Get Tired of Hearing About My Chronic Illness

“That sucks, but it could definitely be worse.” Living with a chronic illness my entire life has forced me to hear that phrase over and over again. Other variations are: “Wow that sounds really painful, but at least it comes in waves.” “At least it isn’t cancer.” “Well, when you’re feeling better you’ll see it [...]