I love Christmas. Love it. The lights, the music, the spirit! I wish Christmas was every month. This year however, I unfortunately did not spend Christmas the way I liked. I spent Xmas in the PICU(Pediatric Intensive Care Unit) due to my heart & kidneys(primarily). Because I spend most of the year in the hospital, I miss many holidays and even my birthday (on multiple occasions). I try not to let my situation get me down though. Yes, my entire body may be failing on me because of years of severe AN. I may have to battle this demon in my head day in and out. With each feed. Every ml. But, I will not give up nor let it define me.

Just thought I would post a picture of my pole for anyone that needs a smile. It sure made me smile. If I need to be fed by a machine, atleast let it look nice, right?!

Happy 2021

#AnorexiaNervosa #Gastroparesis #gastricparalysis #Malabsorption #AtonicColon