Congenital Adrenal Hyperplasia

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Adrenal Insufficiency United

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AddisonsDisease 2y

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FREE Conference on Adrenal Insufficiency and Cushing's Disease

During our conference in Portland Oregon March 30 - April 1st we will have endocrinologists speaking on Cushing's, Primary AI, Secondary/Tertiary AI, and more. There will also be experts covering topics such as:

SSI/Disability

IEP/504/Health Plans

Health & Nutrition

Advocacy and Legislation

Any endocrine, thyroid, or growth hormone issues

Working with a chronic condition

Creating Community

Learn more and register

united4rare.org/aiu-csrf-conference-2023

#AddisonsDisease #AdrenalInsufficiency #PituitaryTumors #Panhypopituitarism #SeptoopticDysplasia #Adrenoleukodystrophy #CongenitalAdrenalHyperplasia

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AddisonsDisease 6y

To my fellow Addison peeps, does anyone find their upper back hurts when they are due their next dose of steroids? (I’m on hydrocortisone)

#AddisonsDisease #AdrenalInsufficiency #Adrenoleukodystrophy #AdrenalGlandTumor #CongenitalAdrenalHyperplasia #AdrenalFatigue

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An abstract piece of art of a woman's face.

An abstract piece of art of a woman's face.

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Congenital Adrenal Hyperplasia

7y

A Life With Congenital Adrenal Hyperplasia

The Mayo Clinic website insists that with treatment comes a normal life. What do they know? I’ve got congenital adrenal hyperplasia (CAH). That means my body isn’t balanced when it comes to hormone regulation. Blame enzymes. Point at recessive genes. Shake your head at my parents who knew the problem, but never lifted a finger to [...]