Septo-optic dysplasia (SOD) is a rare congenital condition characterized by the malformation and underdevelopment of the optic nerve, pituitary gland dysfunction and/or septum pellucidum (midline part of the brain) absence. Two of these effects must be present for a diagnosis, and only 30% of those with SOD have all three. Signs and symptoms include blindness in one or both eyes, pupil dilation, rapid eye movement, delayed development, hypotonia, recurrent seizures, and abnormal movements. The exact cause of SOD is unknown. While there is currently no cure for SOD, treatments can target specific symptoms to improve quality of life. Organizations exist to help those dealing with septo-optic dysplasia in their lives.
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During our conference in Portland Oregon March 30 - April 1st we will have endocrinologists speaking on Cushing's, Primary AI, Secondary/Tertiary AI, and more. There will also be experts covering topics such as:
I just recently got out of inpatient on Monday after being hospitalized for a week. I’ve been struggling with depression and anxiety for a pretty long time and it was brushed aside until I couldn’t take it anymore. I finally got the diagnosis of MDD, severe anxiety and PTSD. I’m on new meds and everything and taking it slow for the time being as campus is closed. However, I still feel not great? I actually don’t know how I feel, I just don’t think anything has really changed much. I’m working on new coping skills though. #Depression#Anxiety #PTSD#SeptoopticDysplasia