Septo-Optic Dysplasia

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FREE Conference on Adrenal Insufficiency and Cushing's Disease

During our conference in Portland Oregon March 30 - April 1st we will have endocrinologists speaking on Cushing's, Primary AI, Secondary/Tertiary AI, and more. There will also be experts covering topics such as:

SSI/Disability

IEP/504/Health Plans

Health & Nutrition

Advocacy and Legislation

Any endocrine, thyroid, or growth hormone issues

Working with a chronic condition

Creating Community

Learn more and register

united4rare.org/aiu-csrf-conference-2023

#AddisonsDisease #AdrenalInsufficiency #PituitaryTumors #Panhypopituitarism #SeptoopticDysplasia #Adrenoleukodystrophy #CongenitalAdrenalHyperplasia

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After?

I just recently got out of inpatient on Monday after being hospitalized for a week. I’ve been struggling with depression and anxiety for a pretty long time and it was brushed aside until I couldn’t take it anymore. I finally got the diagnosis of MDD, severe anxiety and PTSD. I’m on new meds and everything and taking it slow for the time being as campus is closed. However, I still feel not great? I actually don’t know how I feel, I just don’t think anything has really changed much. I’m working on new coping skills though.
#Depression #Anxiety
#PTSD #SeptoopticDysplasia

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Youtubers with chronicillnesses and disabilities

Youtubers with chronic illnesses or disabilities

Polar Warriors | #BipolarDisorder

ResetwithTerry | Graves Disease

FranklyFranca | Graves Disease

Emma Tara |

Shaina Leis | Maladaptive Daydreaming

Leah Dawn | ME, IBS, Emeraphobia & #Depression

Crafting For Almost Everyone.

Dodie – Depersonalisation Disorder

Cara – Cerebal Palsy

Sarah rose – #Fibromyalgia

Life Of A Blind Girl – Retinopathy

Fashioneyesta – #SeptoopticDysplasia

Zoe’s Clan -EDS & co

Serhat Eronal – #SpinalCordInjury

Jessica Chelsey | #Lupus

WheeledNomad | EDS & co

Wheels2walking | Injured Paraplegic

Able Family | Injured Paraplegic

Jordan Bone| Injured Paraplegic

Juliannado | Special Needs & Crohns

Alma Guerrero | #SpinaBifida

Fae System | Antisocial PersonalityDisoder & Bipolar

BriaAndChrissy | OCD & PTSD

Anna Campbell | Bipolar

The Labryinth System | #DissociativeIdentityDisorder

Crystal | Gastroparesis

Liddy Alvarez | Fibromyalgia

Kay Bre | Fibromyalgia

The Life Of Me Smile Magee | Cancer, #Gastroparesis, Dysautonimia ETC

Tayarra Smith | , Sherman’s Disease, #CyclicVomitingSyndrome & spine GI issues

Grace Nicole | Schitzophrenia

Rachel StarLive | Schitzophrenia

Shane Dawson | Depression & Body Dysmorphic Diisorder

Izzy MS | #MultipleSclerosis

Chronically Lyss | #Arthritis

Ellen Jones | Autism

Kay Maynard | Autism

MaxluvsMya | Autism

Rhiannon Salmons | Autism

The Aspie World | Autism

Assistance Dog Adventures | Chronic Lyme

Lemons N Lyme | Chronic Lyme

Kim And Ross | Lyme, & ME

Prisha Bathia | Sturge Weber Syndrome

Lauryn Elizabeth | Hyperprolactinemia

Shontelle Scott | Gastroparesis

This Girl Audra | , IBS and OCD

Gabrielle Ferguson |

Krissy Mae Cagney | & Celiac

Steadfast Soul |

Brooke Houts | #Anxiety & Depression

Nine and Vine | #BloodCancer

Jpmetz | MS

Invisible I | & Autism

Ostomy Diaries | Crohn’s disease

SarahWithStars | #ChronicPain

Trisha Paytas | BPD & PID

The Frey life | #CysticFibrosis

Eyeliner and Empowerment | #CerebralPalsy

Robyn Lambird | Cerebal Palsy

But Ya Don’t Look Sick |

Molly Burke | #RetinitisPigmentosa

Painful Hilarity |

Lucy Edwards | #Blindness

Kelsey Darragh | #TrigeminalNeuralgia

S

Themitowarrior | #MitochondrialDisease

The Killen Clan????

EMILIA VICTORIA |#Endometriosis

Kelsey Morris |#HipDysplasia

Holly Vlogs | Crohn’s Disease

In The Lyme Life | Lyme Disease

Kiki Chanel | #CyclicNeutropenia

Hydrohayley | Hydroceohalus

This Gathered Nest | Down’s syndrome

Foolyliving | Autism

I am still ME

PerfectlyKnitBeauty| #NeuromyelitisOptica

Channon Rose | , PTSD, , ADD, Endometriosis

Ally hardesty | ADHD

JD Dalton | #Albinism

ASL Stew | Deaf

WheelsNoHeels | Spinal Cord Injury

Rikki Poynter | Deaf

Kathryn Morgan |Hypothyroidism

Pain Doctor | Chronic Pain

CFS Health | ME/CFS

Young Chronic Pain | Chronic Pain

MultiplicityAndMe | Dissociative Identity Disorder

Stephanka | #AplasticAnemia

DisociDID | Dissociative Identity

Disorder

Alivia Marie |

OhSoAdrianna |

Amythest Schaber | Autism

Invisible I | & Autism

Sitting Pretty Lolo | ALS

The Mandaville Sisters | One Handed

Pixiwoo|

You Look Okay To Me | #ChronicIllness

Caito Potatoe | Autoimmune #KidneyDisease

A Thousand Words | Adrenal Fatigue

Living With Addison’s | Addison’s disease

Madison Decambra | BPD

KaraLou |

The Dale Tribe | Type 1 #Diabetes

Claire Wineland | Cystic Fibrosis

Jessica Kellgren-Fozard | HMPP, MCTD & co

Katie Scarlett Speaks | Chronic Pain

Just A Skinny Boy | Autism

Sasha Aimey | Endometriosis & Arthritis

ALifeLearned | Mental Illness

Hannah Witton | #UlcerativeColitis

Georgina’s Journey | POTS & ME/

AGirlWithLyme | Chronic Lyme

Olga Chronics |

Sam&Alyssa | Lupus

ChronicallySaltyy | & co

The Files | & co

Arianna | , & co

Zebra to Zebra | & co

Chronically Jenni | & co

Morgan Grant | & co

Simply Hannah | , POTS & co

Abby Sams | , CRPS & co

Izzy kamblau | & co

Rebellious Story | & co

Christina Doherty | & co

Not Your Average Zebra | & co

Simon and Martina | & co

Amy’s Life | & co

Annie Elainey | & co

Chronically Kimberly | & co

Chronically Jaquie | , Mito & co

Sophie’s Life | & co

Life With Stripes | & co

Jordan Bone | Spinal Cord Injury

Rikki Poynter |Deaf

IDrankTheSeaWater | Tourette’s & Mental Illness

Angie and Ruby | Stromme Syndrome

Josh Sundquist | Amputated Leg

Anne Spicer | Crohns & gastroparesis

Sleepy Santosha | Adrenal Insufficency

Live Hope Lupus | & co

Emma Blackery| ME

Yoga My Bed & ME | ME

Moly Christopher | /ME

CFShealth | ME

Bethxxx | ME

Miss Adventure | ME & mental illnesses

MegSays | ME

Ann Twirls | Chronic Pain

VlogBrothers | & Chronic pain

Fibro Mom |

Service Dog Vlogs |

Chronic illness and disabilities

The Vlogging Murrays | Preemie & Chronic pain

Keira Rose | Dermotilonania, Anxiety,

Beckie brown |

Trichitilonania

Maya Imani | Schitzophrenia

John Green |

Savannah Brown | Eating Disorder, Anxiety &

TrichJournal | Body Focused Repetitive Behaviour Disorder &

Emily Rose |

Bonitajunita | Trichotilonania

Allie Malin | Trichotilomania

TheMaddieBruce |

Sammy Marie | &

Madison Decambra |

Tara Lou |

Lace & Lashes | Crohns Disease

Sally Boebelly |

Crohn’s disease

Ashley Jeneatte| Crohns Disease

Abby Green Osteogenosis Imperfecta

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