Adrenal Insufficiency

Join the Conversation on
Adrenal Insufficiency
3.6K people
0 stories
666 posts
  • About Adrenal Insufficiency
  • Explore Our Newsletters
  • What's New in Adrenal Insufficiency

    I’m new here!

    Hi, my name is chroniclyMimi. I recently spent a week in the hospital and was diagnosed with Adrenal Insufficiency and acute renal failure. My blood pressure would drop so low I would pass out when sitting up or standing and at times was even 60s/30s at rest. I live with a slew of debilitating, chronic medical issues that have come to light over the last 13+ years, including Rheumatoid Arthritis, h-EDS, multiple orthopedic surgeries, a h/o uterine cancer, anxiety and depression to name a few. I had to retire with disability at the age of 44 from a 20+ year nursing career and I can tell you with complete certainty that it’s definitely harder to be a full time patient than the health care professionals. I usually consider myself pretty badass and I’ve learned how to adapt and live with my limitations and disabilities (except the motorized bugggy in the grocery store, I refuse to ride on one of those!!) But this most recent diagnosis has me a little concerned and scared, I understand that it is most likely due to the high dose and lengthy tapers of Prednisone I’ve had to take frequently for RA flares, as well as stress being a factor. My initial appointment with the Endocrinologist isn’t until May, so I came back to The Mighty for support from people I trust to help me understand and also guide me through how to adjust to life with this additional chronic condition .
    #MightyTogether #Anxiety #Depression #RheumatoidArthritis #OrthostaticHypotension #ehlers-DanlosSyndrome #DegenerativeDiscDisease #Fibromyalgia #PTSD #addison'sDisease #UterineCancer #BenignParoxysmalPositionalVertigo #ChronicIllness #ChronicKidneyDisease

    16 reactions 7 comments
    See full photo

    Circles Support group, Thursdays 3pm #AdrenalInsufficiency

    There’s an AI group on Thursdays 3pm PST over on Circles. Come by & say hi! 🌺 " originalText=" ">

    3 reactions 1 comment
    See full photo

    Wednesday’s Puppy Is Full Of Woe…

    And has a strong desire to avoid having me take his picture 🙈. The Duke is recovering from a bout of arthritis, so he is on walk rest, and I get to be his emotional support human. To quote his hero Wednesday Addams, “woe is the loneliness number”, and as humans we fall shamefully short of understanding just how hard The Duke has it!

    We try our best to make up for our shortcomings to his Highness though. Unfortunately he would prefer we comfort him with all the treats instead of cuddles—hence his woes are evermore.

    For my part, I seem to have one doctor’s appointment a week lately, and yesterday I got to be a human pincushion while trying to have my blood drawn. The Duke and I make a woeful pair, but I like to think two woes shared is better than one 🖤

    #MightyPets #Dogs #Emotionalsupport #DistractMe #AdrenalInsufficiency

    9 reactions 3 comments
    See full photo

    FREE Conference on Adrenal Insufficiency and Cushing's Disease

    During our conference in Portland Oregon March 30 - April 1st we will have endocrinologists speaking on Cushing's, Primary AI, Secondary/Tertiary AI, and more. There will also be experts covering topics such as:


    IEP/504/Health Plans

    Health & Nutrition

    Advocacy and Legislation

    Any endocrine, thyroid, or growth hormone issues

    Working with a chronic condition

    Creating Community

    Learn more and register

    #AddisonsDisease #AdrenalInsufficiency #PituitaryTumors #Panhypopituitarism #SeptoopticDysplasia #Adrenoleukodystrophy #CongenitalAdrenalHyperplasia

    1 reaction 1 comment
    See full photo

    Flying into the new year like…

    What can I say but that I have two very impressive puppies that appear to hover rather than walk or run! Cuteness aside, I’ve been very lucky the past few days to have some increased energy since I switched from adrenal support to pregnenolone, which allowed me to make the most of the other half’s remaining days off work, so that I was able to rally and go walking with him and the dogs.

    Nothing makes me happier than going for these walks, because for a moment in time, every other worry is suspended and I just get to be me—and it’s a glorious thing to just be.

    #Dogs #ForTheLoveOfDogs #MightyPets #ChronicFatigue #AdrenalInsufficiency #AdrenalFatigue

    3 reactions 2 comments
    See full photo

    Who’s in Chill Mode?

    Hey Mighties! Just poppin in to see how my favorite people are doing. Are you chillin or what? I’m taking some chill out time before our Friday Self-Esteem Workshop. They have been going really well. If you haven’t attended one and could use some confidence boosting tips, we’d love to have you. On another note, my skin is being absolutely annoying and makeup has never really been my thing. Might be time to re-think that.
    Anyhoot, here’s smiling at you Mighty. Wishing you a well weekend!
    #MightyTogether #CheckInWithMe #MentalHealth #PTSD #Anxiety #Depression #ChronicIllness #ChronicPain #HidradenitisSuppurativa #PeripheralNeuropathy #HypothyroidismUnderactiveThyroidDisease #AdrenalInsufficiency #Eczema


    Super Excited!

    Hey Hey Hey Today is the Day Mighties. So nice to share this space with such a supportive community. I’m very excited to be meeting with you in a couple of hours. For anyone who may be having a not so good day, I totally get it. Sending you comforting vibes! See y’all soon! #CheckInWithMe #MentalHealth #MightyTogether #Anxiety #Depression #PTSD #HIVAIDS #PeripheralNeuropathy #HidradenitisSuppurativa #AdrenalInsufficiency


    Good Afternoon my Fellow Mighties #Husbands #Wives #Depression #Anxiety #maritalissues #ChronicIllness #Lonliness #AdrenalInsufficiency

    Hi there everyone! What’s everyone doing for Labor Day? Hopefully you all are having a great weekend and are feeling good! Me? Nope! Haha expected tho! I think I caught a summer cold! Heads stuffed and have zero energy …. But feeling better than yesterday! Husband left to go down to pick up our 23 yr old son (he s moving home after college then taking a yr off to get his shit together” (which he s not even attempted to do!) Im walking on eggshells as to see what this new chapter will bring to this already chaotic household! Husband won’t back me up on issues “Son you need to appt for jobs , son you need to help a little around the house “ you get what I mean….. it s all on my shoulders to be the “bad guy” ….. been feeling ok lately …. But afraid all the stress of this will throw me into another downhill spiral (whether it be mentally or physically- I do not want to go into adrenal crisis again!!) well …. That’s all I got for today my people!! Thanks for letting me vent a bit !! Im sure within a week I’ll be back to vent some more! Haha have a great weekend!!


    Here we go again …..

    Good evening everyone….. sorry I haven’t been in here posting lately…. Health has been a shitshow lately and to be quite honest I’m just freaking tired… tired of all of it . Now I know ! That’s not very positive not very encouraging and not very uplifting. And for that I’m sorry!!! Headed into yet another adrenal crisis last nite …. All the while there husband is too tired from his golf nite to make sure I’m ok…. A couple questions “did you take your med s?” And after almost passing out and taking my bp “whats it reading?” Then back to snoring he goes …. So I guess tonites question is how do you all “deal with it” ? How long do you tell yourself “zig it s on”? Like I said I’m freaking g tired …. Sick and tired of being sick and tired! #husbandsUGH #AdrenalInsufficiency #tired #ChronicDepression #ChronicPain #AdrenalInsufficiency #Hormones