Congenital Central Hypoventilation Syndrome

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Congenital Central Hypoventilation Syndrome
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    Virtual meets with friends sharing same disability

    Hello Everyone,

    My name is Jay Trivedi and I am 30.0.0.5 year old individual diagnosed with CCHS (congenital central hypoventilation syndrome). Also I am an member and advocate of CCHS Family Network and contributor to CCHS Foundation.

    Joining CCHS Family Network has given me the strength and confidence to have everyday conversations with those who share the EXACT same disability. Those conversations could be about anything whether it be about movies, tv shows, school, etc. Because of the network, I am very happy to call those families my brother or sister because I am an only child in my family. I do not have any siblings in my family or girlfriend. Living with disability as an only child has been difficult. But the network has really changed that perspective.

    Each day, I am blessed to be having virtual conversations.

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    I'm new here!

    HELLO FAMILIES AND FRIENDS ALL OVER THE WORLD! My name is Jay Trivedi and it is an honor to be member of The Mighty.

    #MightyTogether

    #CongenitalCentralHypoventilationSyndrome

    #Hirschsprung 'sDisease

    #RareDisease

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