creatingjoy

I as both the mother of a child (now 36) with chronic connective tissue disorder (CTD), and as an adult with the same chronic illness. My son is the 3rd consecutive generation with Marfan Syndrome. We have fought many battles, and learned a great deal along the way. I'm also a caretaker for my younger sister with Marfans. Sis has been called "a medical miracle" and "definitely a fighter." I've watched, and personally experienced the impact becoming "disabled" has on one's life. It's so important to have/find a support system, and creat new routine(s) to bring joy. My best to all the #mightywarriors . #survivinglife #creatingjoy