CSF

It’s happening again, stiff neck and now the almighty pulsing pain into my brain if I move position.
I feel sick, new doctors will not listen. Still no face to face appointment. How long am I going to have to suffer without help 😔
I have had two epidural (not elective but emergency surgery) Three lumber punctures due to suspected meningitis and I have eds.
feeling very alone right now. My family are lovely and caring but they just don’t get the magnitude of pain. Picture of our latest family member 😊
#CerebrospinalFluidLeak #CSF #SpinalCSFLeak #Migraine #migrainwarrior #Pain #ChronicPain

5 hours left... My whole body hurts!

#EDS #POTS #CSF #neuralgia #ChronicMigraines