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    When your sick and tired of being sick and tired

    #Fibromyalgia #Fatigue #Pain #BackPain #ChronicFatigue #ChronicIllness #suffering #CognitivelyDisabled #Pyhsicallydisabled #FibromyalgiaSucks

    We are so sick and tired of being sick and tired. Not having energy to do life. Not haveing the ability to do life. Living codependent and not independent. We are so frustrated sad fed up miserable we are not able to do what others do. In some cases IT is a blessing you have no 9 to 5 cause you can’t work. You have no significant responsibilities cause your not reliable. You have no commute or co-workers to deal with. An ungrateful supervisor or boss to report to. On the flip side you can’t even handle basic vehicle maintenance cause you can’t be outside in the cold or you get a chill. Further you are not able to drive anywhere anyway cause the stress of driving and travel on your body causes severe fatigue pain and you don’t enjoy yourself being out in public.

    At this point if IT were possibly you would like to work remotely like built websites or programming. Yet you have such brain fog or you are not able to focus and you have several fatigue issues with mental focus. So you can really just barely concentrate on your needs to do to keep you alive. You even forgot to pay you bills or get back to that email. In fact you don’t even know what day IT is until you look are your phone.

    Then you go to mindfulness classes or CBT sessions and chronic pain centres where they tell you you can get some relief if you change you thinking or if you meditate 🧘‍♀️ and or do stretches and physiotherapy movements. This is a journey to mental health and body recovery ❤️‍🩹. You continue to do so and when you go and do you feel good yet 1 to 2 hour sessions drain you drastically because your done for the rest of the day.

    Try going to watch your children at a sporting event for a few hours only. To spend the rest of the day on the couch with a heating pad.

    We know there is someone out there that this is speaking to. We know you are going through this too.

    HSP Highly Sensitive People are so sensitive that environmental and social interactions completely drain us. We would love to go and go like the rest of the world. However if your a HSP you have to hibernate and recharge before going out again.

    Please don’t give up there must be a cure there must be a way we can get better ❤️‍🩹.

    Once able to work 60 hours a week. Once able to work look after children and house with a partner. Now just barely managing us. There must be a way. Heck they are transplanting new nerves into people who are stuck in a wheelchair so they can walk. You can’t tell me that IT is not possible to cure this cause world governments came up with a vaccine 💉 for Covid there must be a way to correct Fibromyalgia.

    So if your still reading this and IT hits home cause someone you know has this Chronic Condition. Please please tell them do not give up.

    You matter you are important you are worthy you are not alone you are valued and loved.

    Please write ✍️ please post there are so many people who suffer from this.

    Please keep the faith God can heal anything.

    Please help our community so we can help others with this condition.


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    Breaking free from the chains of chronic illness

    September 4, 2015

    The beginning of all endings.

    A steel beam crashed down my crown,

    With a sense of invincibility, I felt no bounds.

    Toxic positivity clouded my sight,

    shoving my intuition gift aside.

    A voice deep inside my head repeated all day:

    "Please don't go to work today,

    Something terrible will happen to you,

    Listen to me."

    Fierceless, unstoppable, and sometimes blind,

    I ignored my inner voice and went on with my grind.

    Fast forward one, two, five, seven years,

    The life I once knew was long gone.

    Fair-weather friendships now lost, vanished like a sight,

    Replaced by countless lonely hospital stays, sapping my soul at last.

    Pain that never ceased, symptoms without end,

    One more treatment, one more pill, one more illness to attend.

    Until I broke down, and inward I was forced to turn.

    For my strength was also what kept me stuck for so long.

    So I dove in,

    Into a world of pain, grief, sadness, and anger, I began.

    Bit by bit, I learned to love,

    Every part of me, from the sky grace above.

    Connecting deeply with myself, peace I did find,

    Finally, I found my body’s compass, true and kind.

    I am home. I am home.

    Breaking free from the chains of chronic illness

    February 14, 2023

    Elsa Leonardo

    #ChronicIllness #InvisibleIllness #Disability #Pain #journeytoinnerpeace

    15 reactions 1 comment
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    Chronic Migraine awareness

    Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.

    #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

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    Putting Words To It

    While reading a piece of writing for my Lit class, I came across a great quote describing what many of us feel. I feel that this accurately describes mental and emotional pain, whether from mental illness or chronic physical illness that takes a toll on you mentally and emotionally. I feel this especially describes the emotional pain associated with Borderline Personality Disorder which is known as the equivalent to third degree burns over 90% of your body.

    This quote is from a writing titled "Babylon Revisited".

    "They're not like aches or wounds; they're more like splits in the skin that won't heal because there's not enough material."

    #TheMighty #MightyTogether #Pain #mentalpain #emotionalpain #ChronicIllness #MentalHealth #BorderlinePersonalityDisorder

    15 reactions 6 comments
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    We want people to feel less alone.

    My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
    We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

    We want YOU to feel less alone.
    Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

    You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
    #Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

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    Truly. Small things can be great too.

    I am limited.
    This is my reality.
    I only have so much energy to go around and I need to pick and choose what to spend it on. Always having to keep in mind that I cannot overdraw my account. I need to balance my ‘checkbook’, if you will, to make sure I don’t go down to zero either, because then I might not have enough for the next day.
    (Obviously I am not perfect at Pacing as I find myself doing too much on occasions as I get impatient with my limitations. Overall, I’d say I do pretty well with it.)

    So what do I choose to spend it on? Well, some mundane tasks need to be done like laundry or light cleaning, so I spread it out over a few days. I work within my boundaries which I have somewhat figured out by trial and error. This is part of Pacing.
    Now, I am a very lucky Gal to have a super supportive husband and three kids that help me with some of the heavier chores, just would like to point that out.

    When the Mundane Pragmatic stuff have been taken care of I choose to spend my energy on stuff that fills my heart and soul with contentment. Whether they’d be Creative Coping Strategies like painting, drawing, forest bathing, expressive writing or listening/making music (now the latter depends fully on headache pain levels but within my capacity, music will always have a part in my life) or just being with my family in the moment.
    I also am a half of a duo who talk about exactly this in podcast we have named Creative Copes- A labor of love for ourselves and hopefully an aid to others.

    This is what I spend my energy on.
    Things that matter to me; that settles body and mind and makes my heart pumping blood.
    I am not all knowing and cannot be Worldly Great: I am clearly not meant to be a main figure in changing the world lol.
    But I can do Small things in a Great Way, for myself and others, and hopefully someone can pick up what I am putting down and feel more inspired to get up every morning and meet the day head on. Love and light ❤️
    #pacing #CopingTips #MECFS #Fibromyalgia #ChronicHeadaches #ChronicIllness #Spoonie #spoonielife #MyalgicEncephalomyelitis #Anxiety #Agoraphobia #ChronicPain #dynamicdisability #ChronicPain #Pain #Acceptance #Grief #TheMighty

    13 reactions
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    Perspective shifting is one of the tools I have learned to use when pain has me feeling sad and miserable about my circumstance. Comedy can lighten things up and I recommend finding your favourite sources. I like stand-up comedians and Dry Bar Comedy on YouTube or their Internet page is very worthwhile to look into because it is not full of F bombs and most of the comedians are so funny. 💜💞 #Pain #shifting



    I’m waiting to see a rheumatologist but it’s taking awhile. The doctor that recommended I see a dermatologist thinks I may have an autoimmune disorder. After a lot of research and reading about it.. I do believe it’s a good possibility.

    While I’m waiting is there anything I can do in the meantime? I’ve hit another fatigue spell mixed with some depression. My joints and body aches. I’ve got no energy and sleepy. It seems to hit every few weeks hardcore but there isn’t a day goes by im not tired. It’s a lot of pushing myself. I take a multivitamin and magnesium for supplement. Any suggestions for coping mechanisms until I can see the doctor would be greatly appreciated. ❤️ #AutoimmuneDisease #ChronicFatigue #Fatigue #Depression #TheMighty #Undiagnosed #Anxiety #BipolarDisorder #MedicalProfessionals #Pain

    21 reactions 13 comments

    Need you help!

    I want to compile a list of celebs who have been open about their mental health struggles and those who are fighting to bring awareness to it. I count those struggling with addiction as well. #TheMighty #MightyTogether #MentalHealth
    #StopTheStigma #Awareness #Celebrities #Hollywood #ActorsWithDisabilities #musicians #artists #Art #craft #Pain #Inspiration #Motivation #creativity

    32 reactions 18 comments