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  • What's New in pain
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    It’s hard knowing that the chronic pain will get worse and you don’t know when it’ll be. It reminds me of a quote from The Fault in Our Stars- “There's no way of knowing that your last good day is Your Last Good Day. At the time, it is just another good day.” However, it’s even harder when a flare makes you face that reality even more.

    I believe my pain is getting worse. Flares are more often, longer lasting, more exhausting, more problematic. It’s a lot harder when I can’t really take painkillers for it.

    I got diagnosed with GORD/ gastritis/ hiatal hernia. The symptoms were getting worse, and long story short I had a gastroscopy where I received those dx’s. At the time, my reaction was one of relief. Relief that my symptoms have a physical recognised cause. Because I had just gone through ENT and cardiology where they couldn’t (they could prove the symptoms but not find a cause). Now it’s still relief, but also frustration. It could have been avoided if they had arranged a follow-up appointment when I first went to the doctors about it almost 10 years ago.

    Speaking of frustration, I found out that my cholesteatoma actually still appears to be of existence. I was told it was gone, but going over my medical notes it appears this wasn’t the case (besides, it has to be surgically removed to be permanently gone & it wasn’t). Where I keep losing my hearing, I tried mentioning it to the doctor but it got dismissed. Even though there’s things at stake, I’m too tired to fight and get another opinion. Not that I’d be able to anyway- the migraines have caused me to just want to shut down from everything & I only leave the house for appointments.

    I’m quite tired of all of it to be honest. It’s exhausting, and being in pain I have the physical exhaustion on top of it. Not sure what else to say or where I was going with this post, but yeah. I’m back?

    #ChronicPain #Pain #BackPain #Cholesteatoma #GastroesophagealRefluxDisease #HiatalHernia #Gastritis #ChronicMigraines #Migraine #exhaustion #MentalHealth

    22 reactions 2 comments
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    Mental illness and chronic pain is not a joke! I Wrote something for all of us!

    Oh, dear exhausted soul I know you are suffering from a disease
    But, trust me you are not alone in this,
    I know how hard it is to get up from your bed
    When deep inside, you feel like a dead,
    I know what it takes you to hold your toothbrush
    I know it is becoming hard for you to get away from this rush,
    But, as the sun always shines , so will you
    Your life is just giving you a clue,
    That, one day all of this pain will transform you into something unbreakable and new.

    - Prachita

    More power and strength to all of the chronic and mental illness warriors! ✨♥️

    #ChronicIlless #MentalHealth #Pain
    #InvisibleIllness #MentalHealthAwareness

    7 reactions 1 comment
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    What to Write in a Chronic Illness Journal

    Here are 4 elements to consider to write in your journal #ChronicIllness #ChronicPain #Pain #Food #mood

    4 reactions

    What is a professional Overcomer?

    If you deal with chronic illness or mental health and are unable to do all that someone without these problems can it doesn’t mean you have no value in fact it means your even more valuable because through the process and journey of these struggles we learn so much about perseverance, compassion and love. We all have one thing in common WE CHOOSE to love each day despite our pain and struggles
    and we have a job it’s the most important of all to OVERCOME daily and that is not a job we get paid for but a job we choose to take everyday. So celebrate your profession because it really does make you who you are. The darkest times are when we have to choose to shine.

    #POTS #MentalHealth #Anxiety #ChronicIllness #CheerMeOn #overcome #Depression #suffering #Pain #Faith

    8 reactions
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    When your sick and tired of being sick and tired

    #Fibromyalgia #Fatigue #Pain #BackPain #ChronicFatigue #ChronicIllness #suffering #CognitivelyDisabled #Pyhsicallydisabled #FibromyalgiaSucks

    We are so sick and tired of being sick and tired. Not having energy to do life. Not haveing the ability to do life. Living codependent and not independent. We are so frustrated sad fed up miserable we are not able to do what others do. In some cases IT is a blessing you have no 9 to 5 cause you can’t work. You have no significant responsibilities cause your not reliable. You have no commute or co-workers to deal with. An ungrateful supervisor or boss to report to. On the flip side you can’t even handle basic vehicle maintenance cause you can’t be outside in the cold or you get a chill. Further you are not able to drive anywhere anyway cause the stress of driving and travel on your body causes severe fatigue pain and you don’t enjoy yourself being out in public.

    At this point if IT were possibly you would like to work remotely like built websites or programming. Yet you have such brain fog or you are not able to focus and you have several fatigue issues with mental focus. So you can really just barely concentrate on your needs to do to keep you alive. You even forgot to pay you bills or get back to that email. In fact you don’t even know what day IT is until you look are your phone.

    Then you go to mindfulness classes or CBT sessions and chronic pain centres where they tell you you can get some relief if you change you thinking or if you meditate 🧘‍♀️ and or do stretches and physiotherapy movements. This is a journey to mental health and body recovery ❤️‍🩹. You continue to do so and when you go and do you feel good yet 1 to 2 hour sessions drain you drastically because your done for the rest of the day.

    Try going to watch your children at a sporting event for a few hours only. To spend the rest of the day on the couch with a heating pad.

    We know there is someone out there that this is speaking to. We know you are going through this too.

    HSP Highly Sensitive People are so sensitive that environmental and social interactions completely drain us. We would love to go and go like the rest of the world. However if your a HSP you have to hibernate and recharge before going out again.

    Please don’t give up there must be a cure there must be a way we can get better ❤️‍🩹.

    Once able to work 60 hours a week. Once able to work look after children and house with a partner. Now just barely managing us. There must be a way. Heck they are transplanting new nerves into people who are stuck in a wheelchair so they can walk. You can’t tell me that IT is not possible to cure this cause world governments came up with a vaccine 💉 for Covid there must be a way to correct Fibromyalgia.

    So if your still reading this and IT hits home cause someone you know has this Chronic Condition. Please please tell them do not give up.

    You matter you are important you are worthy you are not alone you are valued and loved.

    Please write ✍️ please post there are so many people who suffer from this.

    Please keep the faith God can heal anything.

    Please help our community so we can help others with this condition.


    16 reactions 2 comments
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    Breaking free from the chains of chronic illness

    September 4, 2015

    The beginning of all endings.

    A steel beam crashed down my crown,

    With a sense of invincibility, I felt no bounds.

    Toxic positivity clouded my sight,

    shoving my intuition gift aside.

    A voice deep inside my head repeated all day:

    "Please don't go to work today,

    Something terrible will happen to you,

    Listen to me."

    Fierceless, unstoppable, and sometimes blind,

    I ignored my inner voice and went on with my grind.

    Fast forward one, two, five, seven years,

    The life I once knew was long gone.

    Fair-weather friendships now lost, vanished like a sight,

    Replaced by countless lonely hospital stays, sapping my soul at last.

    Pain that never ceased, symptoms without end,

    One more treatment, one more pill, one more illness to attend.

    Until I broke down, and inward I was forced to turn.

    For my strength was also what kept me stuck for so long.

    So I dove in,

    Into a world of pain, grief, sadness, and anger, I began.

    Bit by bit, I learned to love,

    Every part of me, from the sky grace above.

    Connecting deeply with myself, peace I did find,

    Finally, I found my body’s compass, true and kind.

    I am home. I am home.

    Breaking free from the chains of chronic illness

    February 14, 2023

    Elsa Leonardo

    #ChronicIllness #InvisibleIllness #Disability #Pain #journeytoinnerpeace

    15 reactions 1 comment
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    Chronic Migraine awareness

    Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.

    #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

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    Putting Words To It

    While reading a piece of writing for my Lit class, I came across a great quote describing what many of us feel. I feel that this accurately describes mental and emotional pain, whether from mental illness or chronic physical illness that takes a toll on you mentally and emotionally. I feel this especially describes the emotional pain associated with Borderline Personality Disorder which is known as the equivalent to third degree burns over 90% of your body.

    This quote is from a writing titled "Babylon Revisited".

    "They're not like aches or wounds; they're more like splits in the skin that won't heal because there's not enough material."

    #TheMighty #MightyTogether #Pain #mentalpain #emotionalpain #ChronicIllness #MentalHealth #BorderlinePersonalityDisorder

    15 reactions 6 comments
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    We want people to feel less alone.

    My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
    We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

    We want YOU to feel less alone.
    Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

    You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
    #Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

    10 reactions