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#fibroflair #Fibromyalgia #Fibromyalgia #Fibro #Pain #ChronicPain #Fatigue #ChronicFatigue #endlesstorturetreatment

Sorry I've been away a couple weeks, & not kept up with my notifications. I will work on attending to each soon as can. Fibro pain has had me in bed (on couch where I sleep (& where I live) throughout. It's been extreme, and I had my first #suicidal thought a few days ago. First in a couple months or so. See, I forgot that the Tegratol had been prescribed for the broken leg (& ran out of same time that pain got back to overwhelmingly torturous & insurmountable) was helping the fibro pain at the same time. I thought I'd achieved/reached a new place, but found id just ran in a great big circle. Yuk. It really sucks & I not sure how long I can bear it. One day at a time; one harsh moment at a time ! #fibrosucks #toomuchtobear #OnedayAtaTime #onemomentatatime

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Forgiveness

Are certain things unforgivable? Mind you I am writing from a place of sheer pain and not of sound mind… I think it’s up to every person to choose if they want to forgive and to do it on their own terms. Meaning from afar if necessary. I forgive myself for all the lies I believed for years about myself. But I do not wish to live in a fairy tale land where I blindly forgive my abuser and act as if nothing ever happened. There are consequences to offenses and especially to something like this. I renounced Christianity so please don’t talk to me about it. I’m starting to follow Hinduism and I meditate, so Buddhism is also important to me. I think I just need to take a breath. #Pain #Sadness

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Today

I'm getting picked up in just under an hour. My caregiver is coming with me. I'm getting cortisone injections in both hips. I have to schedule another appointment for injection into my jaw. Both of my hips are really bad right now. Pain is shooting down my right leg. I showered and didn't sweat after. I'm not anxious or worried. I've had this done plenty of times. It'll be nice to see my doctor. He's also my caregivers doctor.

#Pain #ChronicPain #BackPain #FemoralAcetabularImpingement

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Newbie but not new with RA and pain

I didn’t realize how serious RA is until it started creeping into my life. But we keep going as the Lord God gives us the strength and hope to carry on. #RheumatoidArthritis #Pain

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How do you manage physical discomfort, pain, or fatigue while in bed?

There can be a range of reasons why we may feel physical discomfort, pain, and fatigue while spending our days in bed—from health symptoms and muscle tension to stiffness, even stress. Finding relief and some level of comfort can be a constant challenge, but it’s also essential for maintaining a sense of balance.

For some, it may involve using supportive pillows or cushions to adjust their body alignment and alleviate pressure points. Others may find relief through gentle stretches or movement, when possible, or by using heating pads or cold compresses to soothe sore muscles. Breathing exercises or practicing regular hobbies can also help reduce stress and ease the mind, which in turn can ease physical discomfort.

Sometimes, it’s about creating a comfortable environment—adjusting room temperature or dimming lights to promote relaxation. And for many, reaching out to loved ones or healthcare providers for advice or support can provide both physical and emotional comfort.

What helps you manage physical discomfort, pain, or fatigue while you’re in bed?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #ChronicFatigue #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancers #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed

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fibromyalgia, chronic pain

I'm in my 20's. 2 years back I had GRADE-3 meniscus tear in both of my knees. In 2023 March I had my left knee surgery.

Few months later I was diagnosed with ligament swelling of both of my thumbs till end of palm. Which gives very very intense pain & same issue I got in both of my shoulders.

Then post surgery 9 months in December 2023 my operated knee got again tear.Now it's October 2024 and both of knees pain so severely that if I walk few steps/times in my home I feel like my knees would cut and fall off. The meniscus tear pain is like a knife is poking from inside and with all the knee pain, my both thumbs pains extremely like I feel chopping them off as it would be better one time pain rather than all of the time. I'm only in relieve when I'm sleeping or else all of the time I'm in pain.

I've already done these tests:results

1)HLA-B27: -VE

2)S URIC ACID: 4.0.0.7

3) CRP: -VE

4) ANTICCP: -VE

5) R FACTOR : <10 6)="" ionic="" calcium="" :=""

7) VIT D,25-HYDROXY : 28.0.0.78

8) ESR : 5

9) WBCs: 7.0.0.84

10) RBC:5.38

11)HB: 15.0.0.18

12)CRP QUANTITATIVE : 1.0.0.94

13)ALINE AMINOTRANSFERSE: 23.0.0.94

fibromyalgia, chronic pain these were the final diagnosis.

So basically i can't type much on mobile/laptop neither in paper, was not able to eat for a year, pains if I sleep on either side of shoulder for a longer time, trouble while trying to sleep, can't sit down due to tear and shoulder pain if try to get up.. I apply ice pack and volini gel on hands as prescribed by doctor.

My life has stopped.Please suggest any medicine/test/doctors, ANYTHING.#Fibromyalgia #ChronicPain #meniscus #Tear #continuouspain #Pain

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ONLY 1 FAMILY PHOTO OF WHAT USED TO BE

#questions #Pain #Rejection #Heartache #Lonliness #Family #outcast #unfamiliar

I'm wondering what the f*** happened to my once close nit family unit. Despite the traumatic events that resulted in my BPD I believe I had a good childhood and a great loving supportive family.my father had NPD and my mother was extremely antisocial but they were high functioning as far as raising kids owning a house and working full-time. My mother was loving compassionate supportive and so caring when it came to us kids she would spend all her free time spending time with us while my brother was at home He's 8 years older and he left when I was 9 for college.I can remember doing things as a family all the time playing badminton going swimming riding mountain bike going on family vacations shopping spree road trips on our birthdays My brother coming home for Christmas and us doing traditional European Christmas Eve celebration.We would watch TGIF cable television every Friday as a family and Saturday night board games and then Sunday night special dinners on top of the six other days a week we had family dinners together.If there was something happening at my school like children performances for Christmas my mom was always there she never missed a thing except for bring your parent to school day. I grew up having my mom read me bedtime stories and give me a hug before bed and saying good night I love you in our language which is "dobre notz" forgive my spelling.I was ostracized by our whole entire town because I never got socialized in having no family and parents without friends with kids nobody taught me any of the social skills I needed to know to be able to not be targeted.So needless to say growing up my very best friend was always my mother.After the age of five there was nothing that I was afraid to tell my mother I could always tell her the truth no matter how bad how painful except for things that make me cry oh she would get mad when I cried.At 14 One day she calmly just asked me if I have had sex yet and do I need birth control should we make a doctor's appointment.I found that to be a little odd as I had no friends barely made it to school and hardly left the house but I had no problems answering the question.Every Time I got a new boyfriend and I was crazy in love and he was the one My mom was the one I could talk to about it.She was also the one who would keep my secrets like every time I got pregnant and didn't want to tell my dad.She was 99% of the time my biggest support system.My father and I had a very surface level relationship growing up I can remember him providing for me and watching movies with me but that's about it. we didn't become closer until I was around the age of 16 and even then it was quite a volatile relationship with his narcissistic personality disorder and my free spirited BPD disorder "Imma do what I want to do and you can't do nothing about it" attitude.As a family unit me my mom and my dad and my kids were incredibly close we even lived in the same apartment building one floor apart. we'd have dinner together every single night My mom would come with me to every school event for 2 of 3 of my kids lives.She was the one to stay with me at the hospital when I was having each child.If I or the kids got sick she was right there taking care of us.Sadly just over 2 years ago on May 2nd My father passed away of a heart attack.

FROM THAT MOMENT ON I HAVE NO CLUE WHO MY MOTHER IS OR WHY SHE CHANGED. SHE IS COLD APATHETIC DISTANT AND CAN BE QUITE MEAN. FOR EXAMPLE AT THE BEGINNING OF OCTOBER I LET MY MOM KNOW THAT SOMETHING AWFUL HAPPENED TO MY CHILDREN AND I AND THAT NO WE WERE NOT DOING OKAY BECAUSE OF IT. SHE HAD NOTHING TO SAY AFTER I TOLD HER AND THEN WHEN I SAID I'D LIKE HER TO BE AROUND MORE SHE SAID "DON'T CONTACT ME TILL HALLOWEEN YOUR BROTHER'S COMING FOR THANKSGIVING I DON'T WANT TO BE BOTHERED" ONCE AGAIN FAMILY HOLIDAY COMES UP BUT ME AND THE CHILDREN ARE NOT INVITED. DOES ANYONE HAVE ANY INSIGHT THAT THEY CAN SHARE WITH ME AS TO WHAT THE HELL HAPPENED TO THE WOMAN WALKING AROUND IN MY MOM'S BODY THAT IS NOT THE PERSON I'VE KNOWN FOR 40 YEARS?? THE ONLY REASON SHE EVEN SPEAKS TO ME IS BECAUSE I KNOW SHE'S GETTING UP THERE IN AGE AND I CHECK ON HER EVERY SINGLE SATURDAY BUT SINCE THE DAY MY FATHER DIED SHE'S NEVER ONCE PICKED UP THE PHONE TO CALL ME. FAMILY DINNERS STOPPED HOLIDAYS TOGETHER STOPPED SHOPPING TOGETHER STOPPED CAR RIDES TOGETHER STOPPED ABSOLUTELY EVERYTHING THAT ME AND MY CHILDREN GREW UP WITH JUST STOPPED. OUR ENTIRE FAMILY CONSISTS OF MY THREE CHILDREN ME MY MOM AND MY BROTHER THAT'S HOW SMALL OUR FAMILY IS. SO WHY DOES MY MOTHER ONLY VALUE MY BROTHER IS A FAMILY MEMBER AND HAS COMPLETELY DISCONNECTED AND DISTANCED HERSELF FOR ME AND THE CHILDREN THAT SHE HELPED RAISE? SHE'S ALWAYS BEEN WONDERFUL WITH CHILDREN INCLUDING HAVING ONE WITH BPD WHO WOULD HAVE TO MAKE THE PHONE CALL ONCE I WAS AN ADULT HEY MOM I'M IN JAIL AND SHE WOULD HANDLE IT LIKE IT WAS NOTHING NEVER GET UPSET ALWAYS BE SUPPORTIVE AND TAUGHT ME THAT FAMILY STICKS TOGETHER NO MATTER WHAT. SO WHAT COULD HAVE HAPPENED TO CAUSE SUCH A DRASTIC DRAMATIC CHANGE IN HOW MY MOTHER FEELS ABOUT ME AND MY CHILDREN??#Rejection #isolated #Lonliness #Family #Pain #Sadness

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Tears - it is well. #Depression #Anxiety #Grief #Pain #Hope #Relationships #Faith #Christianity #MentalHealth

Shed a lot of tears in church this morning. I hate crying but the service was so emotional this morning. My daughter spoke about the hymn, “It is well with my soul”. One of my favourites.

My Wife shared about when our daughter was born after a 36 hour labour, our baby wasn’t breathing. The doctors frantic intervention wasn’t working, so in desperation my Wife started singing the song she would frequently sing over our unborn baby, “Jesus loves me”.

As soon as she started singing our baby lifted her head a little and started breathing.

When our daughter was a seriously ill teenager a doctor told us to stop seeking a solution to her chronic health issues and to take her home and “let her rest and enjoy her short final days”.

We ignored that advice. Doctors said she would never work, marry, have children or live a long life. Today she owns her own business, employs 15 people, has two children and is a Pastor in our church.

We triumph in it until we triumph over it. Life hasn’t been easy for her. A few years ago when I was hospitalised for bad mental health I got the news that my daughters son, Tobias, had passed away. Such unimaginable grief and pain.

Yet, in those days of formidable pain, we experienced the great love, comfort and presence of God.

Be encouraged today. You are loved. There is hope. It is well.

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Pain Management #Fibromyalgia #Pain

What does everyone do to manage extreme pain episodes? I’m looking for prescription or over the counter medications that have worked for you, home remedies, speficic topicals or things that you do that helps lower the intensity in times of unbearable pain. I’ve tried many things but I still find myself crying and wanting to scream from the pain. My doctors are not very knowledgeable in managing fibromyalgia but are willing to prescribe and try things with me after I’ve presented them with research. I can’t afford to see specialists until I get better insurance and I don’t know anyone else with this, so I’m feeling stuck and would love to hear what works for others

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