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ONLY 1 FAMILY PHOTO OF WHAT USED TO BE

#questions #Pain #Rejection #Heartache #Lonliness #Family #outcast #unfamiliar

I'm wondering what the f*** happened to my once close nit family unit. Despite the traumatic events that resulted in my BPD I believe I had a good childhood and a great loving supportive family.my father had NPD and my mother was extremely antisocial but they were high functioning as far as raising kids owning a house and working full-time. My mother was loving compassionate supportive and so caring when it came to us kids she would spend all her free time spending time with us while my brother was at home He's 8 years older and he left when I was 9 for college.I can remember doing things as a family all the time playing badminton going swimming riding mountain bike going on family vacations shopping spree road trips on our birthdays My brother coming home for Christmas and us doing traditional European Christmas Eve celebration.We would watch TGIF cable television every Friday as a family and Saturday night board games and then Sunday night special dinners on top of the six other days a week we had family dinners together.If there was something happening at my school like children performances for Christmas my mom was always there she never missed a thing except for bring your parent to school day. I grew up having my mom read me bedtime stories and give me a hug before bed and saying good night I love you in our language which is "dobre notz" forgive my spelling.I was ostracized by our whole entire town because I never got socialized in having no family and parents without friends with kids nobody taught me any of the social skills I needed to know to be able to not be targeted.So needless to say growing up my very best friend was always my mother.After the age of five there was nothing that I was afraid to tell my mother I could always tell her the truth no matter how bad how painful except for things that make me cry oh she would get mad when I cried.At 14 One day she calmly just asked me if I have had sex yet and do I need birth control should we make a doctor's appointment.I found that to be a little odd as I had no friends barely made it to school and hardly left the house but I had no problems answering the question.Every Time I got a new boyfriend and I was crazy in love and he was the one My mom was the one I could talk to about it.She was also the one who would keep my secrets like every time I got pregnant and didn't want to tell my dad.She was 99% of the time my biggest support system.My father and I had a very surface level relationship growing up I can remember him providing for me and watching movies with me but that's about it. we didn't become closer until I was around the age of 16 and even then it was quite a volatile relationship with his narcissistic personality disorder and my free spirited BPD disorder "Imma do what I want to do and you can't do nothing about it" attitude.As a family unit me my mom and my dad and my kids were incredibly close we even lived in the same apartment building one floor apart. we'd have dinner together every single night My mom would come with me to every school event for 2 of 3 of my kids lives.She was the one to stay with me at the hospital when I was having each child.If I or the kids got sick she was right there taking care of us.Sadly just over 2 years ago on May 2nd My father passed away of a heart attack.

FROM THAT MOMENT ON I HAVE NO CLUE WHO MY MOTHER IS OR WHY SHE CHANGED. SHE IS COLD APATHETIC DISTANT AND CAN BE QUITE MEAN. FOR EXAMPLE AT THE BEGINNING OF OCTOBER I LET MY MOM KNOW THAT SOMETHING AWFUL HAPPENED TO MY CHILDREN AND I AND THAT NO WE WERE NOT DOING OKAY BECAUSE OF IT. SHE HAD NOTHING TO SAY AFTER I TOLD HER AND THEN WHEN I SAID I'D LIKE HER TO BE AROUND MORE SHE SAID "DON'T CONTACT ME TILL HALLOWEEN YOUR BROTHER'S COMING FOR THANKSGIVING I DON'T WANT TO BE BOTHERED" ONCE AGAIN FAMILY HOLIDAY COMES UP BUT ME AND THE CHILDREN ARE NOT INVITED. DOES ANYONE HAVE ANY INSIGHT THAT THEY CAN SHARE WITH ME AS TO WHAT THE HELL HAPPENED TO THE WOMAN WALKING AROUND IN MY MOM'S BODY THAT IS NOT THE PERSON I'VE KNOWN FOR 40 YEARS?? THE ONLY REASON SHE EVEN SPEAKS TO ME IS BECAUSE I KNOW SHE'S GETTING UP THERE IN AGE AND I CHECK ON HER EVERY SINGLE SATURDAY BUT SINCE THE DAY MY FATHER DIED SHE'S NEVER ONCE PICKED UP THE PHONE TO CALL ME. FAMILY DINNERS STOPPED HOLIDAYS TOGETHER STOPPED SHOPPING TOGETHER STOPPED CAR RIDES TOGETHER STOPPED ABSOLUTELY EVERYTHING THAT ME AND MY CHILDREN GREW UP WITH JUST STOPPED. OUR ENTIRE FAMILY CONSISTS OF MY THREE CHILDREN ME MY MOM AND MY BROTHER THAT'S HOW SMALL OUR FAMILY IS. SO WHY DOES MY MOTHER ONLY VALUE MY BROTHER IS A FAMILY MEMBER AND HAS COMPLETELY DISCONNECTED AND DISTANCED HERSELF FOR ME AND THE CHILDREN THAT SHE HELPED RAISE? SHE'S ALWAYS BEEN WONDERFUL WITH CHILDREN INCLUDING HAVING ONE WITH BPD WHO WOULD HAVE TO MAKE THE PHONE CALL ONCE I WAS AN ADULT HEY MOM I'M IN JAIL AND SHE WOULD HANDLE IT LIKE IT WAS NOTHING NEVER GET UPSET ALWAYS BE SUPPORTIVE AND TAUGHT ME THAT FAMILY STICKS TOGETHER NO MATTER WHAT. SO WHAT COULD HAVE HAPPENED TO CAUSE SUCH A DRASTIC DRAMATIC CHANGE IN HOW MY MOTHER FEELS ABOUT ME AND MY CHILDREN??#Rejection #isolated #Lonliness #Family #Pain #Sadness

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Tears - it is well. #Depression #Anxiety #Grief #Pain #Hope #Relationships #Faith #Christianity #MentalHealth

Shed a lot of tears in church this morning. I hate crying but the service was so emotional this morning. My daughter spoke about the hymn, “It is well with my soul”. One of my favourites.

My Wife shared about when our daughter was born after a 36 hour labour, our baby wasn’t breathing. The doctors frantic intervention wasn’t working, so in desperation my Wife started singing the song she would frequently sing over our unborn baby, “Jesus loves me”.

As soon as she started singing our baby lifted her head a little and started breathing.

When our daughter was a seriously ill teenager a doctor told us to stop seeking a solution to her chronic health issues and to take her home and “let her rest and enjoy her short final days”.

We ignored that advice. Doctors said she would never work, marry, have children or live a long life. Today she owns her own business, employs 15 people, has two children and is a Pastor in our church.

We triumph in it until we triumph over it. Life hasn’t been easy for her. A few years ago when I was hospitalised for bad mental health I got the news that my daughters son, Tobias, had passed away. Such unimaginable grief and pain.

Yet, in those days of formidable pain, we experienced the great love, comfort and presence of God.

Be encouraged today. You are loved. There is hope. It is well.

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Pain Management #Fibromyalgia #Pain

What does everyone do to manage extreme pain episodes? I’m looking for prescription or over the counter medications that have worked for you, home remedies, speficic topicals or things that you do that helps lower the intensity in times of unbearable pain. I’ve tried many things but I still find myself crying and wanting to scream from the pain. My doctors are not very knowledgeable in managing fibromyalgia but are willing to prescribe and try things with me after I’ve presented them with research. I can’t afford to see specialists until I get better insurance and I don’t know anyone else with this, so I’m feeling stuck and would love to hear what works for others

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Overwhelmed #EhlersDanlosSyndrome #Pain

Every night I go to lay down I'm so bloated it feels like my bladder will burst from the pressure and any movement is like a blade. When I wake up my joints are locked together so tight even popping them is a challenge. My house is filling with trash, my meals are getting lazier, and no matter how much I beg and complain it seems like no help is coming soon. I don't know what to do. The doctors aren't set in stone about my diagnosis bickering back and forth so not only am I jobless but im unable to accurately apply for disability. I feel helpless anymore.

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Heal Song by Tom Odell

I have had this song on repeat this week. I hope you listen to it free on YouTube or however, but a video with the lyrics is even more helpful.
I hope these lyrics with his voice on this particular song helps wash away some of your pain too.
Try consciously breathing in an out while you listen to his resounding lyrics:

Take my mind
And take my pain
Like an empty bottle takes the rain
And heal, heal, heal, heal

And take my past
And take my sins
Like an empty sail takes the wind
And heal, heal, heal, heal

And tell me some things last
And tell me some things last

And take a heart
And take a hand
Like an ocean takes the dirty sand
And heal, heal, heal, heal

And take my mind
And take my pain
Like an empty bottle takes the rain
And heal, heal, heal, heal

And tell me some things last
And tell me some things last
And tell me some things last
And tell me some things last

#Pain #Trauma #heal #PTSD #ComplexPosttraumaticStressDisorder #MajorDepressiveDisorder #MajorDepression #ClinicalDepression #Fatigue #ChronicIllness #Disability #TRD #TreatmentresistantDepression #ChronicFatigue #ChronicFatigueSyndrome #MoodDisorders #PersistentDepressiveDisorder #DepressiveDisorders #Grief #Songs #Lyrics #MentalHealth #MightyMusic #musictherapy #Music #BipolarDepression

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Living With Dysautonomia

Good morning. I hope this posting finds you all well. I’m not sure why I feel compelled to share my story, but I am here because I have been diagnosed with #Dysautonomia . I have been dealing with all of these symptoms since I was 14 years old. It began with my heart racing uncontrollably, syncopal episodes whirl at school and fatigue. This was controlled with Atenolol. After becoming a mother, I had an episode where I became very dizzy and drove myself to the ER. I had to be assisted out of my car by a rescue team because I could not stand, walk or control my body. I was tested for all the usual suspects, Lupus, MS, etc. Nothing. Several years later, I would be at work talking to someone and suddenly I would get so dizzy I would have to hold on to the seat. I would yell, “please help me. Don’t let me fall!” All the while, I was sitting perfectly straight in my chair though the world looked on tilt. As I grew, the symptoms would come and go. I became a nurse. I took care of both parents until they passed. One month after losing my father, I lost total control of my body. I had no bladder control, no control of my arms or legs, not able to walk straight without holding on, not able to get myself to the bathroom, not able to speak with the same speed or volume. My sister made fun of me. She told me to get over it, to shake it off and get back up. After weeks of having in-home physical, occupational and speech therapy helping me, I was able to return to life. Since then, I have been diagnosed with Rheumatoid Arthritis, Dysautonomia (unknown yet as to which kind) and peripheral neuropathy. Please, don’t think this is a sad post. It is not. I have a wonderful family, a great sense of humor and an astronomical love of life. I have found ways to cope and have learned some tricks to deal with my illness. I hate that it is never over. I hate that it is always there with me. I hate that some days, I make plans but then I wake up and have to save those plans for a different day. I hate that doing normal things like cleaning my house, going to the grocery store, playing with my grand children and running with my dog have become things I must plan my life around because once I finish one of those tasks, my reserves for the day are lost. But I remind myself everyday, God has a plan. He has control. Maybe it’s just His will that I slow down and take care of myself today. I am fighting disability and running from familial diseases (heart disease, diabetes and renal failure) but I feel the breath of these beasts creeping on my neck as I slow more and more every day. I will not give up! I will keep fighting for my new normal life. I will keep pushing through because my children have to see me fight. They have to see that chronic illness cannot stop me from living. They have to see that just because life is hard, we can’t ever just lay down and stay there. Find something to believe in. For me it is my God. My Heavenly Father. If it’s not that for you, though I pray it is, find that higher power that you can love, lean on and be guided by. Trust in Him. He will help you. Maybe it’s all a figment of my imagination, believing in my God. But if it helps me, then so be it. I believe. I must. Because I will not give up. I live in severe pain every day. Some days, I can see, some days, not so much. Some days I can wake up and go Kyacking. Some days I can’t. I will live for the some days. I will share my story and how I cope every day. I will continue to live until I can’t anymore. Wishing you all, a wonderful and blessed day of life! It’s a beautiful life, live it! #Dysautonomia #RheumatoidArthritis #Pain #itsabeautifullife

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Healing…

I read this quote today:”You’re not healing to be able to handle trauma, pain, anxiety, depression. You’re use to those. You’re healing to be able to handle joy, to accept happiness back into your life.” It’s so simple, and true..We need to let go, and release the things that don’t serve us well. The things that held us down, whatever they were, are in the past. Hopefully, we can pull away from things we had to“handle” or “deal with” in the past. I hope you find the joy and happiness in your life! #MentalHealth #Anxiety #Pain #Depression #non trendy

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I'm blue

For a long while I've changed my life to leave and transcend the past I have endured.
Then quiet recently in a professional setting I've made these changes for the abiding reasons.
This particular employee made this sacred information know to a primary person that gave me a lot of pain.
I'm devastated. #CheckInWithMe #MentalHealth #Pain #Depression #Grief #alone

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Battling #cowdens #BreastCancer #SjogrensSyndrome #Pain

Some days I wake up and I feel great. Some days I can’t even conquer my shoes. This is the chronic pain situation. Some days are amazing. Some days I feel like I’m bathing in bleach and ammonia. Some days the lower level of my house feels like a different county some days I can get to the gym. My life is weird that way. Can anyone relate?

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