chronic migraines

Wanting to hear from anyone who has done the Vyepti infusion for migraines and what your experience was like. We have tried multiple medications and Botox and nothing helps for my chronic migraines. Vyepti is my next step but I’m reading a lot of terrible reviews. I’m not sure it’s worth it. I’d love to here from other #mighty warriors.

Hi everyone

I wanted to put an update on here really quick

(My anxiety has been sky rocketing so I am having a hard time communicating and checking in atm.)

My aunt responded and I will be able to stay with her. ❤️

I will be safe and with a relatively safe family member. I do not foresee obstacles with her. 💜

I’m going to be back in my hometown for a few months and I’m going to struggle a lot. But I will be safer than where I am currently/was planning on being 💗

I will put a more thorough update on here as soon as I can.

Thank you so so so so so much everyone for helping me get through this year.

You all on this app have been the single most life changing support I could ask for. Thank you so much.

#Disability
#ComplexPosttraumaticStressDisorder #CPTSD #PTSD #Anxiety #Trauma #DomesticAbuseSurvivors #Agoraphobia #PanicAttacks #ChronicIllness #ChronicVestibularMigraine #ChronicMigraines #Migraine #ADHD #CheckInWithMe #MightyTogether

I am currently homeless, will be street homeless next week.

I have experienced a massive amount of trauma that I am trying to process. I’ve lost everything due to interpersonal trauma, medical trauma, and DV. Even though I did everything the way I was told. I am legally disabled.

I live in southern Ohio and my family is all up in northern Ohio. It’s about a 3-4 hour drive.

I have #Agoraphobia #PanicAttacks #ComplexPosttraumaticStressDisorder #CPTSD #ChronicMigraines #ChronicVestibularMigraine and #ADHD (currently unmedicated bc it isn’t a priority to get my meds due to more urgent needs 🙃🙄)

There is so much to explain. I just feel scared. I have to be out of her so soon. Like less than a week. And I’m paralyzed in fear. I don’t know how I’m going to be able to get all of my stuff out and I’m scared I’m going to have to just leave it like I’ve had to do so many times before

I don’t know if my aunt will say yes. She hasn’t responded yet. She offered but there have been so many offers rescinded that I don’t trust people.

I don’t know when I’ll be able to be back here
I won’t have my services in person
Travel is awful when I’m this sick
I’m so dissociative how am I going to orderly or logically pack up my stuff, move it to my storage, and physically drive all of those hours with my dog. I’m afraid I won’t have help. I’ve done so much on my own and I haven’t been able to eat because of how unsafe I am
I shouldn’t have to do this
My housing voucher was lost a year ago due to medical negligence

I am so so so scared
I don’t want to be back home
There are major triggers there who don’t respect boundaries

#CheckInWithMe

TW: domestic violence

I don’t usually talk about this

I went into the education field when I was 15

It was a “great career to have while raising a family.” 🙄

I was pretty sure I wanted kids although I went back and forth some years.

I got my Ed.S. and began working. I had been in a stable, long term relationship. We were engaged for a couple of years after dating for a few. I was getting married and getting set up for my family.

Then I experienced domestic violence in the first year of our marriage. I temporarily got out the night it turned physical. I got my emergency protection order within a month of it happening. I didn’t wait. I did it all the way society wants us to do it. I fought for him to acknowledge we weren’t reconciling. I thought I was moving on with my life.

I became disabled. I dated someone else who was abusive. I never really got “safe.” I didn’t realize leaving meant I would be stuck here seemingly forever.

I tried telling people how scared I was about all of the critical years of my life were slipping away.

All of my friends were staring families. They didn’t have time to even respond to me. They truly abandoned me. For so many reasons

They almost all work in the education field. Their social medias no longer include much else than their kids. One (the one who treats me like garbage) even joked with her husband that she only married him to have kids. I believe that joke, now seeing how she treats everyone as stepping stones to get what she wants. (If you’ve read my previous posts this probably doesn’t surprise you).

They promised me I could be an auntie to their kids. It was such a lie because they wouldn’t even treat me like a friend, much less a family member. They just didn’t want to deal with their own concerns regarding possible infertility since they were all in their 30s and concerned. It hit too close until it didn’t hit at all and i became othered.

30 years of concurrent friendship, best friends with three women, all of it gone in months because they wouldn’t treat me like a friend, or even a human.

Their families mattered over the decades of friendship.

They no longer have the space in my life.

This hurts so so so much.

I won’t have kids. I’m 36 and I just don’t see it as something that would be a responsible choice as a disabled women with very little support. I don’t want to hear how I’m making the right choice. I didn’t really make it. Society made it for me. When I became disabled. By experiencing trauma. By other people. I can’t even get enough money to eat. Yet I have been told repeatedly I would get more assistance if I had kids. Welcome to the dystopian universe.

And all of the people I loved most just disappeared. Their entire identities just disappeared when they had kids. Their social medias have no history from their life before kids. My own history has been robbed as well as my future

It’s been so cruel.

#DomesticAbuseSurvivors #Anxiety #PTSD #CPTSD #ComplexPosttraumaticStressDisorder #Trauma #ChronicIllness #ChronicMigraines #ChronicVestibularMigraine #ADHD #Disability #DisabilityBenefits #Agoraphobia #PanicAttacks

Hi.
Idk if this is going to make sense
I just feel devastated right now
(Please see previous posts for more info)
I’m two years homeless. I’m disabled and cannot get my medical needs met. I don’t have the resources I need to survive and I’m experiencing a lot of medical trauma and be betrayaltrauma.

I don’t know how to catch anyone up on what happened today. But I just don’t have any plan for safety.
I thought I did but I found out the timeline is going to be even longer.
I’m devastated. All I want is safety
I cannot move on with my life until I have safety. I cannot do any therapy until I have safety. My life is seemingly forever on hold because of negligence and trauma.

I cannot keep moving my things from temporary place to temporary place.

I do it all without support and I am so weak because I cannot eat enough.

I am scared I’m going to never see my belongings again because I cannot go to my storage (massive triggers)
Can you imagine being without the simplest things that make your day easier or more comforting for years? Without things that make life bearable?

I have so many memories stored in there that I never want to remember again after this year.

This is torture
I don’t know where I will be in a week and a half
I have lost years of my life, years of simple things like accessing my every day things that provide me joy and comfort, because of negligence
I do not want to leave everything I own to go to a city I don’t trust with the medical conditions I have when I have already been failed by this system so many times.

#ComplexPosttraumaticStressDisorder #CPTSD #PTSD #Trauma #Agoraphobia #PanicAttacks #GeneralizedAnxietyDisorder #ADHD #ChronicIllness #Disability #DisabilityBenefits #ChronicMigraines #ChronicVestibularMigraine #CheckInWithMe

It’s really hard to accept the way I’m being treated. I refuse to just let these agencies speak to me the way they do without calling them out.

I have been experiencing extreme food or toiletries insecurities and shortages. It has gone to the point where I’m so overwhelmed with everything I’m not getting that I cannot figure out where to start with what I need.

The one agency that i consistently have gotten some supplements like noodles and shampoo etc has severely restricted my services when I advocated for myself. The told me “we work with survivors not for survivors.” WHAT HAVE I NOT DONE!?
I got confused by the email because of how wordy it was. They have known for years this is a limitation for me. No one called me. Then the reoccurring appointment kept getting missed. Despite knowing I needed to access resources. I told them in group about the barriers. They already know.
They aren’t acknowledging this is the only place I can access with my limitations. And they know I am in dangerous need. I bring it up every week. And no one has called me.
This has been a complete 180 from how it was a few months ago.
I had always been supported and encouraged by them. They didn’t even call me to fully hear what I was experiencing.
Everyone else I have spoken with are stunned this happened, they all know it’s not okay. But that doesn’t change how they are treating me because they are now another agency literally silencing my voice by telling me I can’t talk in group at risk of sounding too clinical. Before I even got to talk.

I’m so disappointed and I’m so scared. These are our helpers. These are our advocates. 🤮😱

#DomesticAbuseSurvivors #ComplexPosttraumaticStressDisorder #CPTSD #Anxiety #PTSD #Trauma #GeneralizedAnxietyDisorder #Agoraphobia #PanicAttacks #ChronicMigraines #ChronicIllness #CheckInWithMe #ChronicVestibularMigraine

I love music and it's gotten my through a lot of hard times with my health. Lately, it's been a lot of faith music for me, like Hold On by Katy Nicole and Desert Road by Casting Crowns.
Do y'all have any good songs that help you through? I'm always looking for good music. #ChronicMigraines #spoons #PTSD #MastCellActivationDisorder #EhlersDanlosSyndrome #AutonomicDysfunction

I am not disabled because I am poor
I am poor because I am disabled

Getting a job isn’t going to cure my disabling condition.

In fact, it is legally suggested that trying to work would worsen my condition

Which is why I am disabled

So I just want people to stop trying to fix my disability by telling me to do things I am too sick to do. Legally.

I feel like others can relate

#DisabilityBenefits #Disability #ChronicIllness #ComplexPosttraumaticStressDisorder #CPTSD #ChronicMigraines #ChronicVestibularMigraine #ADHD #Agoraphobia #Anxiety #PanicAttacks #GeneralizedAnxietyDisorder