Groshong Catheter

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PosturalOrthostaticTachycardiaSyndrome 5y

Today, I successfully showered with #ChronicIllness

For the first time, I was able to successfully waterproof my central line I have for #PosturalOrthostaticTachycardiaSyndrome treatment. This is the first time since getting my #GroshongCatheter that I haven’t gotten it wet in the shower!
#CheerMeOn

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photo of woman wearing glasses covering part of face with scarf while surrounded by lights

photo of woman wearing glasses covering part of face with scarf while surrounded by lights

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Ehlers-Danlos Syndrome

6y

4 Lies to Stop Believing About Surviving With a Chronic Illness

I want to preface by explaining where this writing is coming from. • What is Ehlers-Danlos Syndrome? • What Are Common Ehlers-Danlos Syndrome Symptoms? I have Ehlers-Danlos syndrome (EDS), a genetic connective tissue disorder that primarily effects my joints (based on the type I have — it varies from person to person). With this, I [...]