A Toy designed by me !!!
some creative work done by me in the last month.
some creative work done by me in the last month.
So many new things happening as of late.
Humera helped not a bit. The first month and a half felt great and it reminded me the good of being human. Five months later and my rheumatologist put me on a new medicine called Enbrel(amongst my 55 other meds I take for my many conditions).
I took my first dose on Sunday but I feel as bad as if I wasn't taking any meds whatsoever.
Years ago my EDS meant I had to learn to walk more carefully so I didn't dislocate my joints hundreds of times a day and using my tendons wrong, bruising them left and right. Now I have to relearn and the pain is simply horrific.
And my whole digestive system is a mess of course. Swallowing ten times just to get one bite down really takes any good out of food. Constant nausea and vomiting doesn't improve anything whatsoever.
And a hundred more symptoms of misery makes my huge mountain of existing even heavier.
Yeah I am blessed in many things but health or ease of existing are most definitely not on any of the lists.
Only a very cursed body that does work hard to try to do its best in aiding me, poor thing. Thankful for the small bit of good it tries to do while also wishing I could trade bodies with a healthy person for at least one day.
If only!😕🫤😔
Alas, I wait still for my new meds to start working with fingers crossed and tears streaming down.
Thank heaven that I at least have a few doctors that are trying!
Such a long 29 years of devastating suspense!!!
May the holidays bring the light and hope you deserve this season. And if not, may these Christmas lights on my family's tree lift your soul for even a small bit of time ✨️✨️✨️
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Upallnight #IfYouFeelHopeless #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #PTSD #MentalHealth #MightyTogether #MightyPets #Migraine #MemoryLoss #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking #MajorDepressiveDisorder #nightterrors
May everyday be filled with everything that makes you happy and everything that you want. May you always live your best life and do everything your heart desires. Love you all! <3 #MentalHealth #Depression #Anxiety #Bipolar2 #BipolarDisorder #Psychosis #Epilepsy #GeneralizedAnxietyDisorder #ObsessiveCompulsiveDisorder #BPD #BorderlinePersonalityDisorder #Schizophrenia #SchizoaffectiveDisorder #Diabetes #DiabetesType1 #SuicidalThoughts #Suicide #Selfharm #SocialAnxiety #SuicidalThoughts #PTSD #PanicDisorder #ADHD #PanicAttack #PanicAttacks #dissociativedisorders #AutismSpectrumDisorder #Autism #DownSyndrome #ChronicIllness #ChronicFatigueSyndrome #ChronicPain #CheerMeOn #MightyTogether #Mania #MajorDepressiveDisorder 3>
The Owl 🦉: I need support right now because...
The Peacock 🦚: Something challenging I'm learning to overcome this year is...
The Swan 🦢: Progress to me means...
I'll go first!
I choose the peacock. 🦚
Something challenging I’m learning to overcome this year is understanding my limits and recognizing that it’s okay to say "no." I’m also learning to be kinder and more patient with myself.
💌 Sending love to my Mighty family today!
#CheckInWithMe #MentalHealth #CheerMeOn #Depression #Anxiety #Fibromyalgia #Migraine #EatingDisorder #BorderlinePersonalityDisorder #ADHD #ObsessiveCompulsiveDisorder #PTSD #BipolarDisorder #Disability #ChronicPain #ChronicIllness #RareDisease #AutismSpectrumDisorder #Parenting #Caregiving
Speaking up, sharing how we feel, and expressing our thoughts and concerns to our doctors, caregivers, families, and friends is essential for advocating for ourselves and our health. We deserve care, compassion, and treatment that support our recovery and well-being. After all, no one knows our bodies and minds better than we do, and our voices are powerful tools for creating the change and support we need.
When was a time you were a strong advocate for your health? How did it make you feel?
Share your thoughts and experiences below! 💌
#MightyMinute #CheckInWithMe #CheerMeOn #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Depression #AutismSpectrumDisorder #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie
Just wanted to say that to a group that actually knows what I’m saying 😅
I’m grateful for my therapist (and entire care team) for all of the validation and reassurance- but it’s just really hard because I never know what I’m doing and if I’m doing it “right.” Even though the rational side of me is like “there isn’t a right or wrong” and my therapist is reassuring me. I don’t understand the roadmap ahead of me because it is nothing like what I’m used to.
I’m grateful for my boyfriend not leaving me when my panic attacks and dysregulation gets so bad that I’m sure he is going to kick me out and he still keeps showing up and making it a safe place for me.
For me, life is a lot different (safer) this year than it was last year. I need to keep reminding myself that. I hope everyone is able to find a little bit of some relief for one of the many things that brings us here. ❤️
#ComplexPosttraumaticStressDisorder #Neurodiversity #ADHD #PanicDisorder #MentalHealth #Trauma #CheerMeOn #MightyTogether
Happy Monday, Mighties! 🏅
We made it! Month 12 is here—what an incredible milestone. 🙌
What are your hopes for the days and weeks ahead? What are you looking forward to? What’s something you’re working on overcoming?
💌 Bonus: Here are a few gentle reminders in case you need a pick-me-up today:
✨ You’ve made it through every challenge and moment to get to this point. It’s absolutely OK to be proud of yourself (we sure are!).
🌻 You are Mighty, important, and valued.
❤️ Your voice and story matter.
#MightyMinute #CheerMeOn #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Depression #AutismSpectrumDisorder #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie
Let's reflect on our mood tracking experience this month!
What were some trends or patterns you saw come up? Have you learned anything new, reassuring, or interesting about yourself in the process of mood tracking this month? Is there anything you would like to improve or work on moving forward?
💡 Bonus: Feel free to also comment the color(s) that best represents your mood today as well. 🎖️
🔵 Blue: Calm, relaxed, confident
💚 Green: Open-minded, creative, reflective
🟣 Purple: Empathetic, caring
🧡 Orange: Stressed, overwhelmed
🔴 Red: Anxious, alert, concerned, worried
💛 Yellow: Depressed, unhappy, melancholy
🟤 Brown: Tired, exhausted, drained
🖤 Black: Bored, annoyed, restless
⚪ White: Not sure if I can put my mood into words.
🌈 Rainbow: Other (share in the comments!)
#MightyMoodTracking #CheckInWithMe #Selfcare #MentalHealth #ChronicIllness #ChronicPain #Disability #AutismSpectrumDisorder #Fibromyalgia #BorderlinePersonalityDisorder #Depression #Anxiety #BipolarDisorder #PTSD #ObsessiveCompulsiveDisorder #Migraine #MultipleSclerosis
#CheerMeOn
Learning a new skill can take time and energy, but it can also boost your confidence and open up opportunities for you and the goals you set for yourself. Whether it’s mastering a language, improving your cooking skills, enhancing your active listening, building empathy and leadership abilities, developing your public speaking, or working on communicating better in general, every skill you gain adds value to various aspects of your life.
What skill are you interested in learning or improving?
Mighty staffer @sparklywartanks wants to improve her public speaking and presentation skills!
#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #CheerMeOn #DistractMe
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #Endometriosis #Eczema #Depression #Disability #DistractMe #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Headache #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #Upallnight #IfYouFeelHopeless #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #CheerMeOn #Hypersomnia #WakingNightmares #Sleepwalking #RestlessLegsSyndrome #plantarfasciitis #musclespasms #MultipleAutoimmuneSyndrome #MajorDepressiveDisorder