So, literally since the day I was diagnosed with hEDS my body has been going down hill. The thing that’s bothering me the most is my knees clicking and feeling like they’re about to pop out and my right arm. Shoulder down to my thumb, index finger and middle finger. If I even lift my arm up for a few second my fingers become numb. It’s always sore and achy no matter what I do. My wrist hurts like no other and my elbow is always shooting pain into my forearm. When I get my husband to massage it there are large knots in my hands and arms. Does anyone experience severe pain in between the thumb and index finger? It hurts so bad that I can hold a pen or color with my kids or lift anything really. I’ve been having to do things with my left which is sloppy for me. It always feels like I need to pop my fingers and wrist. 24/7. My elbows are hot and swollen and if I press on them it has a deep shooting pain. Please tell me someone else experiences this?! I’m feeling pretty alone. #HEDS #ChronicPain #Painsomnia #crackingbones #hotjoints #Fibromyalgia #severepain