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Insomnia, Painsomnia…. morphing into a vampire 🥱 ?

Arghhhhhh, it’s 4:31 am and I’m sitting here watching mindless tv. Law and Order SVU to be exact. Trying to summons those sheep that you apparently were told to count. Does anyone remember that? What was that all about? Lol, hope everyone else was able to sleep. FYI I am completely jealous if that is the case 😮 #Insomnia #Painsomnia #MultipleHealthChallenges #Gastroparesis #mightycontributor

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Painsomnia strikes

It’s 6am ish where I live and been taking meds for pain and insomnia but nothing is working. I’m in agony. I’m really exhausted but my back muscles wouldn’t stop aching and spasming. Anyone out there? Idk what else to do. This happens all too often and i feel defeated. #Painsomnia #Insomnia #fibroflare #BrainFog #ChronicFatigue #Pain #MyalgicEncephalomyelitis

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Pain Management

Hey, everybody! I've been having a lot of widespread pain lately. It feels more like connective tissue pain/damage than my normal joint, nerve, and muscle pain. My usual pain management techniques haven't been giving me much relief. Does anyone have any suggestions for things I could try? I'm having a really hard time sleeping so I'm getting a little desperate. #EhlersDanlosSyndrome #ChronicPain #Painsomnia

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#Painsomnia Fibro

Guys I need suggestions my nightime pain has been absolutely ridiculous lately. What do you do to help? I cannot handle anymore its so hard #Fibromyalgia

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3AM Heating Pad Date #Painsomnia #Hypermobility #Endometriosis #EhlersDanlosSyndrome #HEDS #Arthritis

The upside to having painsomnia at 3AM is that you have 8 different heating pad/devices to choose from. The downside is everything else.

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Post surgery struggles

I had a #venogram on Thursday to address #nutcrackersyndrome and #MayThurnersSyndrome . Compression was found in both my renal and my iliac. My iliac was stented for the third time. This recovery has been brutal. The pain is horrible. I cannot get in a comfortable position. I’m just frustrated. I woke up at 3am in a full #PanicAttack l am grateful my boyfriend was with me and helped me through it. But I haven’t at a decent night of #Sleep in days. I hate #Painsomnia . I Like to have soft blankets and lots of pillows and stuffed animals around me when I feel like this. How do y’all find comfort?

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What is one thing that you love about summertime?

☀️Summertime shady decks/cool nighttimes☀️

Having fibro can make temperature control an issue. Too hot, too cold, most days I feel like a mixed bag between Princess and the Oea and Goldilocks. Everything ’bothers’ and temperatures need to be ’just right’.

I have always enjoyed the sun and It’s life giving properties. I have managed to get a little sun on my skin while out, and be out on my shady deck enjoying my flower pots. I have a thick foam cushion loveseat which has made sitting out there enjoyable. This summer there have been some cool rainbows also. Sharing from my deck;)

Having painsomnia, gets me up at 3 or 4 am. By then the temperature drops and it’s comfortable to be out, so I go sit on the deck to watch the night sky, and hang with the fruit bats that like to do flybys over my head.
#Fibromyalgia #Painsomnia #Summer #RAINBOWS #Joy #ChronicHeadaches


Gotta catch ‘em all

The last few weeks have been particularly hard on me.

Mentally, I’m mostly okay. Physically, I’m not. And that’s caused me to question a lot of things, wonder how it got to this point, increasing the severity of incidents where I won’t take painkillers.

I’m being referred to cardiology for a tilt table test.

In April, I was told I had low blood pressure but they didn’t seem too worried. At the end of May after worsening lightheadedness, I was told the same, and I was basically just told just to eat more and take iron supplements. And then last week, I went back again.

I initially made the appointment for something else a month before (I had to wait for a month), but then the lightheadedness got worse, so I told them about it again. I told them I had taken iron supplements, I was eating healthier than ever, I was staying hydrated, I was staying active, I was just really doing all the right things. And again it was low.

They’ve diagnosed me with postural hypotension in the meantime and told me to try compression socks for a week, and then if that didn’t work to call them and they’d refer me. So here we are. I get to have a blood test in September while I wait to be seen.

My sinus issues had a major flare up. I was so miserable with it that I sent a email basically begging them to give me an appointment (I was referred back in February but waiting list is apparently a year) because it was beginning to affect my mental health, and I get to see them in October.

It’s affected my hearing, so I had to chase up my ENT appointment. I hope it is just the sinus issues causing it, and not a third relapse of my ear problem, especially as everything seemed perfect last time I saw them. It would be nice to celebrate the first winter in 11 years without an ear infection.

And then of course, my referral for heartburn/ acid reflux. I see the doctors for a one-month review, which will end in the referral they wanted to do (because I had suffered for at least 5 years w/out diagnostics) but held off on. The medication they put me on has somewhat helped, but I’m still having to take gaviscon most days.

Finally, the chronic pain. It’s been difficult these past two days, and after (stupidly) lifting a sofa up because the cat pushed her toy under it (and then she herself went under it so I had to call my sister because I physically couldn’t lift it for much longer), it’s been worse. I still forget that I’m not really supposed to do things like that, and I always pay the price (pun not intended, but yeah cause volatarol is expensive).

I’m just really very tired. I remind myself it could be worse, which is probably what has helped me stay positive and mentally mostly okay, but sometimes it gets to me. Particularly when it’s yet another tablet added to my daily medication. It makes me tired, and I think “it only gets worse as I get older”. I want to stop them, but I know I can’t. I ended up in hospital the last two times I did.

Or another time it bothers me is when everything is getting worse/ is bad/ is happening all at the same time. This post doesn’t even cover all of it, but at this point I’m too tired to write anymore. Speaking of tired, I’ve only had 5 hours sleep each day for the last 3 days. I wake up early and then typically can’t get back to sleep because of pain and insomnia :))

#ChronicPain #Depression #GastroesophagealRefluxDisease #Heartburn #AcidReflux #BloodPressure #Lowbloodpressure #PosturalHypotension #Hospital #DoctorsAppointments #Doctors #Sinus #HearingLoss #ent #cardiology #Hearing #Medication #MentalHealth #Pain #BackPain #Insomnia #Painsomnia