hpp

I just created this group and hopefully will find and connect with others with #hpp #Hypophosphatasia #ChronicPain #RareDisease

Hi,
I am new to The Mighty community, and I'm excited to be a part of it. I am 23 years old and not even close to the place in my life that I thought I'd be at 23, which has been a sore spot for me. A year ago, I was diagnosed with #Hypophosphatasia, as was most of my family. This is an extremely rare disease that I am still learning about every day. While I am grateful to have a name to the disease that has been trailing me my entire life making life difficult in general. I have chronic pain daily headaches/migraines anxiety and depression, and that's just the tip of the iceberg that this disease affects. While I appreciate not being the only one in my family to face this disease, I struggle almost more due to comparing my progress and symptoms to theirs. I thought that I understood and had accepted my disease, but I have realized its more of a tide of acceptance. Does anyone else experience this with their #RareDisease?

#hpp #Anxiety #Depression