Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
236K people
0 stories
11.6K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

How do you keep track of your spending habits?

Let’s be real Mighties — it’s not always easy keeping track of EVERYTHING you may have to pay for, especially when unexpected circumstances and expenses come rolling through.

It can be super helpful, however, to have an app, tool, or system in place that tracks how much you’re spending and allows you to be on top of your finances.

Are there any apps or tools you use to keep track of how much you spend? What tips would you give to someone who wants to track their spending habits better?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 1 reaction 1 comment
Post
See full photo

Springs first flowers

Needed some uplifting distractions so I noticed our garden has begun to pop early excuse the pun. California poppies, Lavender Splash (probably last year it's a bit unruly and Tuscan Blue Rosemary with another variety of crawling Rosemary can't remember the name. Just thought I'd share to hopefully brighten someone's day 🙂💙#Anxiety #Depression #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #ObsessiveCompulsiveDisorder #MentalHealth #DegenerativeDiscDisease

Most common user reactions 9 reactions 4 comments
Post
See full photo

What area of your health do you feel needs more attention right now?

Taking care of your health often involves many layers. Those layers can become even more complex when you add health conditions, disabilities, or unexplained symptoms. It takes a lot of work and awareness to keep track of all that may be happening in your body (something we Mighties know all too well! 🙋🏻).

Based on what you have on your plate right now, what aspect of your health could use a little more attention or care? How are you thinking about prioritizing that area of your health?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 6 reactions 5 comments
Post
See full photo

TRUE or FALSE: Budgeting comes easy to me.

Happy Monday, Mighties!

This week we’re talking about a topic that people often find uncomfortable: budgeting.

From maintaining our homes, to managing our health, to even paying for the things we enjoy like TV subscriptions or traveling, budgeting is something we all have to think about more often than not. Making important financial decisions is one of the many unavoidable responsibilities that come with #adulting.

Do you find budgeting easy or is it challenging for you?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 3 reactions 4 comments
Post
See full photo

What does self-care look like for you today?

Hi, Mighties! 💫

It's Friday, and as we wind down from the week, let's connect and check in on our self-care. 💚

Share with us how you're prioritizing self-care today. You can also respond to one of the prompts below if you'd like:

🎧 What’s your go-to distraction right now?

🧰 What products, items, or accessibility tools are helping relieve your symptoms?

😌 What are some effective ways you’re relieving stress right now?

🚫 What are you choosing not to do today and leaving for another time?

🗨️ Who are you reaching out to for help or support, if needed?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 9 reactions 9 comments
Post
See full photo

What’s one thing you can do today that will make you feel more organized?

One step or action can go a long way — especially when it comes to organization. Rescheduling plans, sorting your mail, or breaking down those boxes for recycling can make a big difference on your organization to-do list.

What’s one thing you can do today that will help you feel more organized?

📦 P.S. You got this. Every small action in the right direction is a WIN!

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 3 reactions 2 comments
Post

Anyone with porencephaly or cerebral palsy?

Hey. It's been a long time since I've been on here. 2 years+. Quite a bit has changed. I'm working kitchen at my job now. It is geniunely tiring but fulfilling. I'm volunteering at a model train museum twice a week now & it gives me motivation to continue building my layout.#CerebralPalsy #RareDisease

Most common user reactions 1 reaction 2 comments