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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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RareDisease 7h

I'm new here!

Hi, my name is BarefootPossum24. I'm here because of my child's #RareDisease #Genetic #GallowayMowatSyndrome #gamos #Parenting

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Take a Mighty Minute

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@takeamightyminute

Mighty Minute 11h

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What do you need from yourself today?

Hi Mighties! ⭐

How was this week for you? What do you need today? What's a low-stakes goal you can set for yourself?

Sending love and an extra boost of energy your way! 💌🔋

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 11h

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Write yourself a motivational message for the weekend ahead.

Mighties, it's already Friday! 😲 For this week's last self-care challenge we'll be writing ourselves motivational messages for the weekend ahead. 😌

Here’s Mighty staffer @sparklywartanks motivational message:
"You're doing an amazing job navigating the stress and challenges over the past couple of weeks. Good things are coming your way. Keep going—no need to worry!"

Drop yours below! 💌

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 1d

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Depression can make life feel like something you have to earn. You tell yourself that once you have fixed enough, achieved enough, healed enough, or become a better version of yourself, then you will finally be allowed to relax, breathe, and live. But your life is not a reward waiting for you at the end of perfection. You are already here, and that matters. Healing is not only about becoming more. It is also about learning how to be present for the life that still exists right now, even in the middle of struggle. Sometimes the most healing thing you can do is stop treating your existence like a project and remember that being alive is already enough reason to be here.

What helps you come back to the life that is already in front of you when your mind keeps telling you to wait?

Also, if you're going through a tough time right now, I want you to know that I post mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 1d

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What are 3 things you’re grateful to have experienced this year?

So much has happened this year, positive, negative, and everything in between.

What are 3 things you are grateful to have experienced? What made those experiences important to you?

Mighty staffer @sparklywartanks three things: having a more stable income, finding a therapist that's helping her achieve her recovery goals, and challenging herself in multiple aspects of her life and, despite experiencing really harsh symptoms, continuing to move forward.

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 2d

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When you’re struggling with depression, it can feel like every quiet moment has to be filled with worry, productivity, or pressure to figure your whole life out. But healing is not always about pushing harder or getting somewhere faster. Sometimes it is about learning how to come back to the present in small, gentle ways. A warm drink. A slower breath. A few seconds of stillness. A reminder that this moment does not have to be improved before you are allowed to be in it. You do not have to solve everything today. Sometimes peace begins when you stop rushing past the life that is already here.

What is one small thing that helps you come back to the present when your mind is racing?

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 2d

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Free write! Share what’s been on your mind.

Mighties, let's take a moment or two to free write today. You can write about something that you’re proud of yourself for accomplishing; a health goal that you have; a challenge you're facing; a poem that you wrote or something that you created; a list of thoughts, phrases, or words that have been on your mind; or even something you're looking forward to.

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Tazman1967

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@tazman

MentalHealth 3d

Taking care of business

It's something that no one wants to do but it would be neglegent on our part as adult human beings not to plan for the inevitable. An Advance Care Directive is something you have to utilize so that you and your family can have a day on end of life treatment. I have one on my mom of course but today I had to write one for my end of life and name my mother as being able to make decisions on behalf should I end up in the hospital. The whole thing made me very sad and frustrated as it is my duty to take care of her till she passes not for her to lose me. Anyways just had to let it out and this is my safe place.#MentalHealth #MuscularDystrophy #RareDisease #ChronicPain #DegenerativeDiscDisease #Fibromyalgia #Disability

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Rare Disease

Related Conditions?

When Your Child With a Rare Disease Doesn’t Feel Brave

How My Daughter's Rare Disease Opened My Eyes

I'm new here!

What do you need from yourself today?

Write yourself a motivational message for the weekend ahead.

What are 3 things you’re grateful to have experienced this year?

Free write! Share what’s been on your mind.

Taking care of business

Feed for Rare Disease