hypermobity

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    Chronic pain dismissed by doctor

    I went and saw a rheumatologist yesterday because of some physical symptoms I've been having. Specifically, my knee locks and I have to kick it really hard to make it unlock and then it's sore and tender for days. I also have pain in my knees, ankles, low back, upper back, shoulders, neck, and jaw. My primary care provider referred me to this Doctor when I told her I was concerned that I may have joint hyper mobility and am interested in figuring out what is causing my discomfort.

    At my appointment, I had no visible signs of inflammation, so the specialist told me there was no need for testing for rheumatological conditions. She did note that my joints are hyper mobile and recommended genetic testing for that. When she touched and put pressure on my joints, it felt very odd and twitchy. Almost like an electric feeling. All she said was "there's some crunching but no inflammation."

    When she saw in my chart that I used to be on antidepressants and a mood stabilizer, she asked "who's idea was it for you to go off of those medications?" and I told her my own. She asked if my pain was better when I was on them and I said I am here for physical health, not mental, and I have a therapist who I see regularly.

    She recommended taking tylenol, and I told her I prefer not to. Then she said "well if you don't even need tylenol...." suggesting that many pain is not bad. I insisted "No, it's not that I don't need it, I prefer natural methods such as cannabis and resting when I need to." She became very dismissive after that and basically just told me that nothing is physically wrong and to go see my therapist.

    Does anyone have any advice on where to look for help next?? I'm getting desperate.

    #CheckInWithMe #ChronicPain #hypermobity #medicalgaslighting
    #neurodivergent
    #ADHD

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