How many of you were diagnosed with a new condition as a result of a medical test (blood, imaging) for your main condition?
I had CT scan to rule out diverticulitis. It did rule that out, but "incidental findings" included a mass in my left kidney suspicious of cancer, and cyst in my pancreas. I have a rare autoimmune liver disease (Primary Biliary Cholangitis or PBC) stage 4. I watch all my labs and imaging tests closely as I get them done every 3 months. These "incidental findings" threw me for a loop and I've spent months delving into it. It made we wonder how many others have experienced this. Please share your experience. #incidentalfindings #RareDisease