My doctors are ineffective, only follow Kaiser protocols which do not support patients with symptoms that fall outside that.

Collapsed twice yesterday-pretty sure I have POTs, but as usual uphill exhausting battle trying to get tested and treated. Went to ER because my autonomic nervous system keeps freaking out, and all tests negative (would not check for POTs of course-that would be to logical for a patient with EDS & chronic gastric issues).hEDs Pretty convinced now that Kaiser is EVIL & just about $$$ not patient care or welfare.

Any suggestions welcome-so far all I have is avoid heat, rest, increase fluids & electrolytes/salts.
#HEDS #POTS ?#Incompetentmedicalcare