intestinal failure

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Exhausted beyond belief

#EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #IntestinalFailure #ChronicPain

I'm a single mum with EDS, POTS, MCAS, IF among many others. This evening I am just wwiped out. Just put the toddler to bed and had to crawl to my bed cos I couldn't get up off her floor. No real point to this post. Judt need to know im not alone I guess

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Favourite self care products #EhlersDanlosSyndrome #potsielife #IntestinalFailure

I'm absolutely terrible at self care and I really need to do it more. Im a single mum to 2 quite demanding children. I have EDS, POTS, MCAS, intestinal failure. Having been in lockdown for 17 weeks with no help im beyond exhausted. My parents have been over to decorate my room so I have a calming space. So what are your favorite self care products?

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