Mast Cell Activation Disorder

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Mast Cell Activation Disorder
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kasiagirl8
 • 
@kasiagirl8
9h

What Is Mast Cell Activation Syndrome?

What Is Mast Cell Activation Syndrome?
Mast Cell Activation Syndrome is a disorder where a person’s mast cells in their immune system release too many inflammatory chemicals very often. This causes them to experience sudden, severe, allergy-like reactions that affect multiple body systems, like hives, swelling, breathing issues, and GI problems, often without a clear allergen. Last but not least, the most common treatments for people with Mast Cell Activation include avoiding triggers and taking medications.

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ericarobin626
 • 
@ericarobin626
MightyTogether 3d

I'm new here!

Hi, my name is ericarobin626. I'm here because

#MightyTogether #MultipleSclerosis #Depression #Anxiety #ADHD #MastCellActivationDisorder

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ALittleBirdie
 • 
@alittlebirdie
MightyTogether 1mo

I’m new here!

Hi, my name is ALittleBirdie. I have some trauma and ADHD struggles. I also live with chronic health conditions including pots, mcas, celiacs, and more. I'm mostly here to share my thoughts and experiences and learn more from others as well!

#MightyTogether #ADHD #PTSD #Migraine

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Ccrouch78
 • 
@ccrouch78
MightyTogether 1mo
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thegoosiestlemurrr
 • 
@thegoosiestlemurrr
MightyTogether 2mo

I’m new here!

Hi, my name is thegoosiestlemurrr. I'm here because I want to have a place to voice my concerns and about my health for fellow spoonies to respond! I would love to chat and meet some new chronic illness friends. I have symptoms and got and ehlers danlos syndrome diagnosis recently. I am having a flare of symptoms recently landing me in the ED. I have gastro intestinal issues, possible MCAS. POTS and temperature disregulation is hard. My ADHD and Autism fighting and roughing it out all day throughout all the noises and sensory issues. CPTSD with the feeling that things are constant triggers. Trying to find out things that work best for me. learning when to recognize my bodies warning signs before physical or mental problems arise. I want to just be creative and meet people. I am exploring new interests and hobbies and willing to chat about whatever!

#MightyTogether #ehlers-DanlosSyndrome #VocalCordDysfunction #Anxiety #Depression #Migraine #Fibromyalgia #AutismSpectrumDisorder #PTSD #ADHD #OCD #EatingDisorder #Grief

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SFN_Foundation
 • 
@sfn_foundation
ChronicPain 3mo
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Raising Awareness for Small Fiber Neuropathy

I'm Matt, and I just started the SFN Foundation to help people with small fiber neuropathy. This condition causes real pain and makes daily life hard, but many patients can't find good information or connect with others who understand.

I know how hard it is to feel alone when dealing with a rare condition as I have small fiber neuropathy. That's why we created our foundation to give patients and families the clear, helpful resources they need and to support research that could lead to better treatments.

Please help spread the word if you feel inclined and feel free to check out the website here: sfn-foundation.org

#ChronicPain #AutonomicDysfunction #Neuropathy #SmallFiberNeuropathy #Dysautonomia #MultipleSclerosis #POTS #Lupus #SjogrensSyndrome #MentalHealth #MastCellActivationDisorder

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usdarejected
 • 
@usdarejected
MightyTogether 3mo

I'm new here!

Hi, my name is usdarejected. I'm here because I have Narcolepsy, Cataplexy, POTS, Mast Cell Activation Syndrome, and OCD. I struggle with food because of allergies, which means my diet is limited and that aggravates the POTS symptoms. Life is a journey and I am just looking for some people who may know how to better manage the ups and downs.

#MightyTogether

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LegendaryZebra837
 • 
@legendaryzebra837
ChronicPain 3mo

HSD and chronic pain

I’ve had chronic pain since I was 17 due to undiagnosed hypermobility spectrum disorder. It could be hEDS but I haven’t seemed a formal diagnosis. I believe I also have MCAS and dysautonomia. I’ve been trying really hard to track my symptoms and make my pain/health better but I feel like I keep failing. I’m looking for a support group who gets how hard this daily struggle is every minute.

#ChronicPain #HSD #HEDS #EhlersDanlosSyndrome

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ToastyPigeon3263
 • 
@toastypigeon3263
3mo

I'm new here!

Hi, my name is ToastyPigeon3263. In the last few months (at age 29!) I was diagnosed with POTS, MCAS, HSD, and suspected reactive hypoglycemia. I'm still in testing for a BUNCH of GI issues. And I'm neurodivergent. It's been a whirlwind.

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