November 6, 2025
Hi, my name is BetsyS. I'm here because I want to learn more about MCAS, Ehlers-Danlos, Dysautonomia, and IBD.
#MightyTogether #Depression #Fibromyalgia #Crohn 'sDisease
5 reactions •
1 comment
What Is Mast Cell Activation Syndrome?
Mast Cell Activation Syndrome is a disorder where a person’s mast cells in their immune system release too many inflammatory chemicals very often. This causes them to experience sudden, severe, allergy-like reactions that affect multiple body systems, like hives, swelling, breathing issues, and GI problems, often without a clear allergen. Last but not least, the most common treatments for people with Mast Cell Activation include avoiding triggers and taking medications.
Hi, my name is ericarobin626. I'm here because
#MightyTogether #MultipleSclerosis #Depression #Anxiety #ADHD #MastCellActivationDisorder
11 reactions •
2 comments
Hi, my name is Ccrouch78. I'm here because
#MightyTogether #BipolarDisorder #Anxiety #Migraine #PTSD #ADHD #MastCellActivationDisorder
6 reactions •
2 comments
Hi, my name is thegoosiestlemurrr. I'm here because I want to have a place to voice my concerns and about my health for fellow spoonies to respond! I would love to chat and meet some new chronic illness friends. I have symptoms and got and ehlers danlos syndrome diagnosis recently. I am having a flare of symptoms recently landing me in the ED. I have gastro intestinal issues, possible MCAS. POTS and temperature disregulation is hard. My ADHD and Autism fighting and roughing it out all day throughout all the noises and sensory issues. CPTSD with the feeling that things are constant triggers. Trying to find out things that work best for me. learning when to recognize my bodies warning signs before physical or mental problems arise. I want to just be creative and meet people. I am exploring new interests and hobbies and willing to chat about whatever!
#MightyTogether #ehlers-DanlosSyndrome #VocalCordDysfunction #Anxiety #Depression #Migraine #Fibromyalgia #AutismSpectrumDisorder #PTSD #ADHD #OCD #EatingDisorder #Grief
15 reactions •
2 comments
I'm Matt, and I just started the SFN Foundation to help people with small fiber neuropathy. This condition causes real pain and makes daily life hard, but many patients can't find good information or connect with others who understand.
I know how hard it is to feel alone when dealing with a rare condition as I have small fiber neuropathy. That's why we created our foundation to give patients and families the clear, helpful resources they need and to support research that could lead to better treatments.
Please help spread the word if you feel inclined and feel free to check out the website here: sfn-foundation.org
#ChronicPain #AutonomicDysfunction #Neuropathy #SmallFiberNeuropathy #Dysautonomia #MultipleSclerosis #POTS #Lupus #SjogrensSyndrome #MentalHealth #MastCellActivationDisorder
5 reactions •
1 comment
Hi, my name is usdarejected. I'm here because I have Narcolepsy, Cataplexy, POTS, Mast Cell Activation Syndrome, and OCD. I struggle with food because of allergies, which means my diet is limited and that aggravates the POTS symptoms. Life is a journey and I am just looking for some people who may know how to better manage the ups and downs.
7 reactions •
4 comments
I’ve had chronic pain since I was 17 due to undiagnosed hypermobility spectrum disorder. It could be hEDS but I haven’t seemed a formal diagnosis. I believe I also have MCAS and dysautonomia. I’ve been trying really hard to track my symptoms and make my pain/health better but I feel like I keep failing. I’m looking for a support group who gets how hard this daily struggle is every minute.
6 reactions •
5 comments
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