My life was forever changed in 2016 when I was told I had cvid and that it was very difficult to diagnose
I felt like all of the trips to the doctor and ER and the many hospital invites were just taking up my life No one could figure it out treat me like I was crazy
Still today not enough Doctors are trained in rare diseases it truly needs to change
Since my diagnosis i do infusions 2x weekly plus now have to be on oxygen full time because B12 deficiency and have to take shots once a week for it
I'm truly thankful for my family my support so of you don't have that I can't drive anymore due to a brain tumor non cancerous but still messed my old noggin up so something else Doctors missed