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    Tj
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    ·
    @stillmebutinpain
    April 29, 2020
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    Hello Everyone #Howdy #Hiya #GoodDaysBadDays

    Good Morning or hiya
    Hello
    How are Ya Today

    I love the words let go of what you cant change. It's hard to do sometimes. But boy is it good to do.

    Like life right now.

    Make the most of today.
    Much love to you all. Hugs all round. Tj 🤗❤💞😘🌞😎😌🌹🥀🌺🤛 #NeverAlone #Alwaystogether #LIVELIFELOVELIFE #Bekind #Hugs #Love #loveyourself #ChronicPain #RareDiseases #checkonyourneighbours #Stayinghome #stayingpositive #mightywarriors #KindnessMatters #Anxiety #PanicDisorder #TrigeminalNeuralgia #kindnesscounts

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    Tj
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    @stillmebutinpain
    April 25, 2020
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    Stacey Simpkins
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    ·
    @staceysimpkins1
    February 29, 2020

    Cometoterms#livingwithcvid

    My life was forever changed in 2016 when I was told I had cvid and that it was very difficult to diagnose
    I felt like all of the trips to the doctor and ER and the many hospital invites were just taking up my life No one could figure it out treat me like I was crazy
    Still today not enough Doctors are trained in rare diseases it truly needs to change
    Since my diagnosis i do infusions 2x weekly plus now have to be on oxygen full time because B12 deficiency and have to take shots once a week for it
    I'm truly thankful for my family my support so of you don't have that I can't drive anymore due to a brain tumor non cancerous but still messed my old noggin up so something else Doctors missed
    #ZEBRAFORLIFE #LIVELIFELOVELIFE

    #CommonVariableImmuneDeficiency

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