For all of my CVID people.. do y’all struggle with just constantly feeling like $hit? Waking up some days and just not being able to get out of bed? Constant fever flashes and chills/shakes?
Hi, my name is meganlkirk. I'm here because I live with 3 chronic illness and just added another one to the list… CVID. My lovely list consists of chronic daily mirgraines, lymphocytic colitis, dysautonomia, and CVID. I am about to start SCIG therapy. I joined because I want a community of people I can relate to, share stories and tips with, etc!
Just curious, have you ever been misdiagnosed?
If so, how did that label effect how you were treated by medical professionals?
Did it have any long term consequences such as difficulty obtaining disability?
Considering writing a short story on the negative impacts of being misdiagnosed. My experience led to years of delayed necessary treatments, medical gaslighting, and Inability to obtain disability.
Hi, my name is roeyro. I'm here because I am hoping to connect with others and share, stories, recipes, remedies, etc. and lift each other up. I have a number of rare diseases and am looking for a community/tribe.
Hi, my name is Unicorn123. I'm here because I want to find support in other people with cronic pain and/or cronic illness.Hope tou just find a support system and get advice/tips.Also to read other people stories.I feel very isolated and hope to find others who know what that’s like too❤️