When is comes to Parenting advice, much of it doesn't apply to parents of children with #RareDisease. What are some of those nuggets of advice that people give that they don't realize just doesn't apply to us?

**Your response may be used in an upcoming story on The Mighty on this topic. **

Mine is "They'll just grow out of it." No, my child won't just grow out of needing a prosthetic eye. There is no magical fix for #persistentfetalvasculature or #microphthalmia . We are still trying to find answers for her hypotonia. Growing out of it just isn't possible for her rare conditions. #SpecialNeedsParent #Parenting #RareDiseases