pelvicfloordyssynergia

As a person with chronic illness, I recognize that “it’s all relative,” but it still bothers me how some people have the privilege of worrying about a test score, while other people aren’t healthy enough to even attend school. And that some people have the privilege of worrying about the progress they’ve made at the gym, whereas others are not able to be as athletic as they once were due to chronic illness/injury/disability/pain. And that some people have the privilege of worrying about work, while other people aren’t healthy enough to hold a job and make money for themselves.
I get it. I used to have those problems. It is truly all relative. Perspective is big. But please, next time you stress over an exam, feel guilty for skipping the gym, and worry about work, think about the people who would love to have your problems. Think about the people who’ve suffered brain injuries and are not cognitively equip enough to attend school. Think about the paraplegics, amputees, ME sufferers etc etc who long to be able to have a refreshing workout. Think about the people with rare or undiagnosed illnesses who cannot work and simultaneously do not qualify for SSDI.
We fantasize about having your problems. #Nohate #ChronicIllness #pelvicfloordyssynergia

I’m the first to use this hashtag. That just goes to show how little knowledge there is about the condition I live with. It’s so lonely and it’s so debilitating. I feel handicapped in a lot of ways. Meanwhile now one cares because they can’t imagine what it’s like. I’m so happy to have Facebook groups. I have a bunch of crazy symptoms because of pelvic floor dyssynergia. Through the internet ive been able to find people with my same diagnosis who have the same symptoms. I know I’m not crazy, but it’s nice to have that extra validation by knowing someone else with pfd also has... brain fog, fatigue, the need to binge eat to relieve pain/discomfort and others. Still, it’s so isolating and frustrating. And the fact that it’s 2019 and there’s no hashtag for it on The Mighty goes to show how unknown this condition is. #pelvicfloordyssynergia #alone #ChronicIllness #chroniccondition #Myopathy #Neuropathy #hopeless