PI

To the healthcare professionals at urgent care, Trust me, I would much rather call and be seen by my primary care provider, or even one of the many specialists I see on a regular basis. You were not my first choice, nor my second choice. I dragged myself out of bed to visit this urgent care clinic because [...]

Our son’s rare disease doesn’t have a ribbon, a 5K benefit race or even a name. That’s why while traveling the world cheering for a kid born with a rare disease, the #LukaTheLion scarf embodies the support galvanized from a passionate network of family, friends and medical providers affectionately referred to as “The Pride.” The [...]

This year, April 22 – 29 is World Primary Immunodeficiency (PI) Week. The Immune Deficiency Foundation has dedicated the entire month of April to PI Awareness. Having a primary immunodeficiency indicates that there is a part or parts of person’s immune system that doesn’t function as it should. Patients with PI fall sick often, and the infections can become [...]