Primary Ciliary Dyskinesia

I first learned about primary ciliary dyskinesia (PCD) 12 hours after my son was born. My son, Conor, was born a full-term, 9 pound, 4 ounce “healthy” baby boy. After staying with us the first night, Conor couldn’t seem to get rid of a tiny bit of congestion which led to a chest X-ray and [...]

Someone at my gym was wearing an Under Armour shirt that proclaims: “Losers Walk.” I’m sure this was meant to be motivating. Instead, it is a message of superiority and exclusion. If you can’t run; don’t show up. For those of us who struggle to run, for whatever reason, the message is that we aren’t good [...]

Breathing. It’s one of the easiest things in the world to do — until you can’t. If you’ve never had to wear supplemental oxygen, there are a few things you probably never thought about people going through just to breathe. When you can’t breathe, the process to get supplemental oxygen can be difficult and frustrating. [...]