Complex Regional Pain Syndrome

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Any advice on how to bear wearing #clothes with #ComplexRegionalPainSyndrome ?

Hi, I have #CRPS in my legs and it's spreading. I also have a bunch of other medical conditions like #EhlersDanlosSyndrome and #PosturalOrthostaticTachycardiaSyndrome and so on. So my current question is this: does anyone in a similar situation have advice on where to get soft clothes that won't aggravate the CRPS or require a lot of maneuvering of my joints which causes problems because of the EDS? Also I'm an ambulatory #Wheelchair user, so I'm seated or lying down a lot of the day.

Then there's the fluffy factor. I'm fluffy (sounds better than other adjectives, or phrases like plus size) and that adds a layer of difficulty in finding clothes. I have some of Torrid's super soft stuff, but the seams still bother me. I've found a seller on Amazon that has bamboo viscose sleep and kinda lounge wear.

The TMI bit: bras are unbearable for my ribs and my skin, but going without is not a great look when you've got fluffy breasts, too, if you know what I mean. And most of the underwear I've tried is terrible, digging in to my groin and causing abrasions that get infected.

Please advise, DM or reply I don't care which. I'm really frustrated with the whole thing.
Thanks!

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Post

Any advice on how to bear wearing #clothes with #ComplexRegionalPainSyndrome ?

Hi, I have #CRPS in my legs and it's spreading. I also have a bunch of other medical conditions like #EhlersDanlosSyndrome and #PosturalOrthostaticTachycardiaSyndrome and so on. So my current question is this: does anyone in a similar situation have advice on where to get soft clothes that won't aggravate the CRPS or require a lot of maneuvering of my joints which causes problems because of the EDS? Also I'm an ambulatory #Wheelchair user, so I'm seated or lying down a lot of the day.

Then there's the fluffy factor. I'm fluffy (sounds better than other adjectives, or phrases like plus size) and that adds a layer of difficulty in finding clothes. I have some of Torrid's super soft stuff, but the seams still bother me. I've found a seller on Amazon that has bamboo viscose sleep and kinda lounge wear.

The TMI bit: bras are unbearable for my ribs and my skin, but going without is not a great look when you've got fluffy breasts, too, if you know what I mean. And most of the underwear I've tried is terrible, digging in to my groin and causing abrasions that get infected.

Please advise, DM or reply I don't care which. I'm really frustrated with the whole thing.
Thanks!

1 reaction 1 comment
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Another Rosie pic for your Monday! Because everyone deserves a Rosie pic to start their day 😉 See how she sticks her whole nose in the rose? Lol

I would feel the same way....except on the days when she wakes me up with her grumbles about my sleeping late 😂 and yes they literally sound like a tiny frustrated person is trying to politely grumble someone awake 🤣

She is a Very talkative pup! Her sassy grunts of unhappiness if we don't pay her as much attention as she wants are the funniest things!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #PsoriaticArthritis #PanicAttack #PanicAttacks #Psychosis #plantarfasciitis

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I needed a distraction from my pain today

My pain level is very high today and I thought I would distract myself and share with others who may also need a distraction... #ComplexRegionalPainSyndrome #CRPS #MajorDepressiveDisorder

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I needed a distraction from my pain today

My pain level is very high today and I thought I would distract myself and share with others who may also need a distraction... #ComplexRegionalPainSyndrome #CRPS #MajorDepressiveDisorder

4 reactions 1 comment