Complex Regional Pain Syndrome

Hi, my name (username) is Ikea. I'm here because as a Mental Health Coach specializing in Addiction, Substance Use, Recovery Coaching, and Grief Coaching, as well as Coaching for clients who are dealing with End-of-Life or Hospice Care and Chronic Illness, I think The Mighty will be a helpful resource to learn about different topics. Originally, I came here because I wanted to read about a blog on CRPS but found the website to be much more than what I thought it was going to be about.

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Hi, my name is wellreadypooh69. I've been diagnosed with CRPS and have no support system to help me live with the pain.

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Hi, my name is monique888. I'm here because

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#ComplexRegionalPainSyndrome

Hi, my name is Jojomkstone. I'm here because

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Hi, my name is Nennoa. I'm here because I am tired of living with this disease

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I was diagnosed with CRPS last year in November. My life has been nothing but pain and hopelessness since. I'm 19 and will finish high school later this year (to give you an idea of my home situation), followed by a gap year due to my sudden chronic pain disorder and the fact that I'm of course struggling to adjust. The reason I'm graduating so late is a long, traumatic story I rather leave alone for now. When my family heard about my diagnosis a majority of them have been in denial that it's chronic. The pain meds I was prescribed don't work (I have a strong resistance to most meds), and these past few months have been spent doing school work, being bedridden, and being forced to try various workouts in hopes they'll somehow cure my CRPS. Long story short, none of these worked and just left me bedridden each time, but my family keeps throwing me into things I physically can't handle because of how extreme my pain is. I'm starting therapy again soon in hopes that can at least help a bit.

Here's my new hurdle: I may have POTS and my family refuses to even give it any thought. I deal with the feeling that my heart is racing, I often get dizzy, nauseous, extremely fatigued, headaches, brain fog, weakness in my legs, occasional digestive problems, occasionally blurred or blacked out vision for a few seconds, and occasional shakiness. CRPS and POTS are also often co-occurring. The only things that help? Laying down mostly, and occasionally salty snacks I think.

Here's my concern: I can't tell if this is POTS or just my CRPS combined with my lack of exercise. I'm not completely glued to the bed, so I doubt this, but I'm not sure. I really just want to know if I should push to get evaluated because this is getting debilitating and extremely disruptive, or if this is just my CRPS. Please share your thoughts if you'd like because I really am struggling here.

Rejection Sensitive Dysphoria
Involves intense emotional reactions to perceived rejection or criticism, even when none is intended.
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Rejection Sensitive Dysphoria (RSD) describes intense emotional pain in response to real or perceived rejection, criticism, or disapproval. The reaction can feel sudden, overwhelming, and difficult to regulate, even when the situation seems minor or ambiguous to others.
RSD is most often discussed in relation to ADHD and is also experienced by many Autistic and AuDHDers and people with trauma histories. It reflects heightened emotional sensitivity and nervous system reactivity, often shaped by years of social misunderstanding, criticism, or chronic invalidation rather than fragility or overreaction.
RSD may show up as avoidance of situations where rejection feels possible, people-pleasing, withdrawal, or sharp waves of shame or sadness. With insight into patterns, support, emotional regulation skills, and self-compassion, and environments that reduce chronic threat, its intensity can reduce over time.

Hi, my name is TracyeIsHIS. I've been diagnosed with RSD/CRPS in 1998 and have been in daily pain ever since...

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Hi all, my CRPS is really flaring at the moment (stress + grief). And my normal techniques (heat pad, tens machine) aren't working. Any ideas? #CRPS #ComplexRegionalPainSyndrome #ChronicPain