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Is anyone else struggling as much as me?
Hi everyone, I'm new to The Mighty. I'm struggling and looking to connect. I want to know I'm not alone. I have anxiety, depression, PTSD, continuing trama, and struggling with diagnosis and treatment for Dysautonomia: CRPS, POTS, and another nurologic condition. Everything is related to rare variations in genes I've inherited. My brain processes only 50% of serotonin and dopamine. Dysautonomia is not well understood and all conditions sitting under this umbrella are diagnosis of exclusion (rule out every other possibility then call it this). I've been struggling with flare-ups my whole life. This most recent flair has lasted 9 months. So far all I've done are tests, blood work, genetic labs, NuroZoomer, CT, MRI's, EEG, LP and still have EMG and TiltTable test coming. I am beyond frustrated with all of it. All I do is wait and there is no sense of urgency and no direct treatments. I'm basically living in bed. I can't work, I can barely walk, brain fog is so intense.
Is there anyone out there as rare as I am? Anyone struggling as hard?
Picture of me and my new dog for attention. He's cute, and I hope he brings a smile to your face.
